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aba

Do you find this condescending?

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This is taken from one of the LLMD's webpage that was recommended by the ILADS. While I realize the bulk of it may be true from a certain perspective. But it certainly does not seem that they are interested in working as a "team" and respecting personal opinion regarding certain treatments. Esp. since Lyme treatments are a moving target.....

 

What do you think??

 

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Compliance is Essential to Treatment


It is essential that when you embark on a diagnosis and treatment plan you fully understand and commit to the schedules of office visits and testing that are recommended to you. Without regular office visits, it is impossible to monitor, interpret and manage your care. Without testing, it is not possible to measure the effects of treatment or confirm diagnoses. If you do not take your medicines as prescribed, no one will know if they are working for you or be able to make appropriate changes.
No amount of time and money spent on doctor visits, lab tests, prescriptions and other therapies can uncover the underlying causes of illness or guide effective treatment if patients do not adhere to their treatment plans and medical recommendations. Lack of compliance can undermine any treatment plan and lead to uncertain outcomes.
Further, every patient who absorbs the time and resources of this medical practice and fails to follow through with her or his care robs someone else of the opportunity for treatment. The bottom line is that [xxx] cannot properly care for non-compliant patients. It is medically unwise and inappropriate, and it is a waste of a patient’s time and money.
Edited by aba

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Absolutely! Cooperate, yes; comply, no.

 

Most of the details in the paragraph make sense (why got to ANY specialist if you just pick cafeteria style what to do and what not to do) but the larger issue as I see it is what directives are they giving patients? LLMDs are making the diagnosis often on a largely clinical basis. Treatment can last for years and follows many different paths. People who visit them are desperate for answers and hope. Mainstream medicine and law has put a lot of pressure of alternative medicine, making it hard to find alternative practioners and information about them. When you put all of this together, the field is ripe for quacks and for predators.

 

I am working on finding LLMD for my kids. My dad had Lymes which was caught immediately (he got the bulls eye rash) but was not properly treated with his primary care doc resulting in peripheral neuropath months afterwards. So he visited another specialist in PA who made him wait for hours in his office, then put him through vague tests without revealing results. The treatment went on for months, out of pocket. If he would have gone on for years and challenged the diagnosis or care he received he would have got the legal letter. He got no better, just poorer.

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Yeah, if Lyme treatment was cut-and-dry I might agree with this approach. But I think it takes a really holistic approach to successful treatment, and like you said, often many different approaches til you find what works.

 

I would be scared to question anything this doctor said! It's like "if you don't like me, find someone else" which we will!

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