Pans/Bart child refuses showers because feet burn and becomes emotional

[HopeinHIM]

Ds is now having burning feet in the shower and then begins to get very emotional for some time after. Can the heat from shower cause a Herx? His feet turn fire red and now he claims his skin hurts all over for about 30 minutes after he gets out. I have tried cooler water but it's still warm enough to cause reaction. He hates the shower now and rarely enters. Any ideas? Perhaps an antihistamine before? Is this a good sign that things are dying?? I mentioned this to his doctors and they just sort of shrugged. He is being treated for Bart and on Ramifcan 150mg a day. LLMD does not want him on another even though I have read two is necessary. Trying to stay on treatment and trust the doc. Thanks for any thoughts

[Mayzoo]

I can only answer for my kiddo. She refuses showers or baths right now. For her, it is a sensory issue. She says the shower is way to loud, but also will not take a bath or wear ear plugs. That is likely a sensory thing about water and it surrounding her.

 

Rather than unnecessarily upsetting kiddo, I use a soapy wash cloth to keep her clean right now, and medicate her for anxiety prior to washing her hair in the kitchen sink. It works for us anyway.