rowingmom Posted February 15, 2015 Report Share Posted February 15, 2015 Thank you surfmom for this advice. There are plenty of newer faces on the forum these days and an overview from a mother who has been through it all is invaluable. DD's reactivity to her infections has changed my life. I am not the same person I was before we started this journey. I have had to be stronger than I ever thought I could be, have had to stand up against medical authority, spouse and family because I knew in my heart that they were wrong about the reasons for her behaviours. Our treatment path has diverged from yours, but DD13 has also found healing. It seems like we all need to find our own way; that not one of our children has an illness with the same underlying cause (infections, genetic variations, autoimmune responses) and that each child requires individualized treatment that can only be established through trial and error. Thanks for the update. Link to comment Share on other sites More sharing options...
Create an account or sign in to comment
You need to be a member in order to leave a comment
Create an account
Sign up for a new account in our community. It's easy!Register a new account
Already have an account? Sign in here.Sign In Now