wembles Posted January 28, 2015 Report Share Posted January 28, 2015 Hi, My son has only recently been diagnosed with PANDAS/PANS, and I am still learning. He has been symptom free since September, following a bad flare that lasted from May until the end of August. The doctor we have been seeing did some allergy testing, as he mentioned that the inflammation from allergies can work in conjunction with infections to trigger a flare, so he wanted to minimize the effects from allergies. My son tested positive for some environmental allergies (mold, juniper, hay...2 others I'm blanking on) and peanuts on the skin test, but not the blood. It was suggested we take a half dose of Xyzal daily (an allergy med) and remove all peanuts and tree nuts from his diet. My son had no visible allergy signs at the time (his present as eczema and itchy eyes), so when the pharmacy could not find the med to order, and we had to switch to a new pharmacy who told us it would be a week delay, I wasn't concerned. Until Sunday....something we were around (still haven't determined what!) caused a huge eczema flare. And, my son's eyes are so puffy with dark circles underneath, I asked him if he fell at recess! Turns out they are so itchy he can't stop rubbing them. That long background brings me to...he started a minor flare of his PANDAS symptoms today as well Familiar symptoms (stuttering, fears--he cried about losing a penny, having to get his wisdom teeth out (he is 6), that he couldn't find a specific stick on the playground, and baby talk. Much less intense than his last major flare, but going from nothing yesterday, it is quite noticeable today! My question: since this flare is clearly brought on by allergies and not an infection, I don't need to start him on antibiotics, right? Our doctor has a prescription of Azithromycin for us on standby that he said to fill if we started to see signs of a flare (to take once a week), but I wouldn't fill that for a flare like this, would I? I did give him a dose of Claritin tonight, since we still don't have the Xyzal. I am hopeful the Claritin will work quickly and we can avoid a full flare...I am just unexperienced and was looking for advice! Thank you! Link to comment Share on other sites More sharing options...
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