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What is the significance of a "not likely" cunningham panel. If the initial flare was over a year ago is it possible that the cunningham changes with time? My son met the clinical criteria for Pans/Panda's 1.5 years ago. Recently had the panel done with no definitive result. Any thoughts?

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I'm wondering how much his behaviors have changed. Would he still meet clinical diagnosis? I would imagine the panel would improve as the condition improves. Could this be a good sign?

My son is sort of the opposite of yours. He lights up significantly on Cunningham but doesn't present so typical of PANS.

What is your son's treatment currently?

K

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My daughter's Cunningham Panel was also done about 4 months from recovery, and her results were normal. Her PANDAS doc took a look at them and asked if it was taken when she was not having symptoms. From that, I would assume that if you're not in a flare, the results will probably be normal.

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The first time my son did this test it showed not likely and he was having his normal everyday symptoms. The second time my son did this test, he had a double ear infection and all his symptoms went through the roof and the test results showed Highly Likely.

 

When I decide to retest, it will be when my son has an infection because this is when the body will make more of those bad antibodies.

 

I am not sure what this test proves except that the antibodies are present when my son is sick with an infection.

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