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DanL

Who doesn't do Prophylaxis? who who?

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Does anyone out there NOT do prophylaxis and does good this way? Or treat as symptoms comes? My kids have just mild symptoms/flares...maybe 5 since February Like Repeating statement, urine urgency, wets bed. Reassurance.

 

If not doing prophylaxis, any other measure used to prevent re infection?

 

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We have not been doing prophylaxis for probably 4 years and my kids are better than ever! We still see flares, and treat them with minocyclene and/or steroids (IV). We recently added low dose prozac to my younger pandas dd who just could not get to 100%- now she is 110%!

 

We see a very well regarded NYC neurologist who does NOT believe in prophylaxis!

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We stopped for 2 yrs, but then ds contracted strep followed by Lyme so we've been back on prophylactics since.

During the 2 yrs we just concentrated on reducing sugar, gluten, etc and took probiotics as often as we could remember. Not always 100% during that period but pretty darn close.

 

dcmom - ditto for me, could you please pm me the neurologist in NY? thx.

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DCmom -- i'm curious about why doctor doesn't believe in prophlaxis....

I've had a couple of doctors suggest the same thing recently to me but I do not fully understand the reason -- is doctor opposed, or just thinks it does not do anything so why keep pumping the kid with abx?

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