PowPow Posted August 22, 2014 Report Share Posted August 22, 2014 (edited) This may be very helpful for securing some testing from a local doctor, or one not as versed in AE and the like. It is short (which always helps!) and even has a little flowchart to point out different manifestations and labs to check. This testing found the cause of my daughter's very, very severe PANS-- which we had been told was: PANDAS (w/o strep) LYME BABESIA DETOX SNP (gene) phase I & Phase II issues. I know that many of you have found healing from these avenues. I am very happy for you. For those of you who have not-- I am very afraid you could missing the proverbial "forest for the trees". We were. Our daughter has a life now and has had it for quite a while. Please print this and take to your family doctor, local neuro- whoever! I know at least one main PANDAS doctor is now testing for these things, at least in severe cases. http://journals.lww.com/co-rheumatology/Citation/2014/09000/Pediatric_inflammatory_brain_diseases__a.13.aspx This is the abstract. The full text is linked to the "parents of kids with PANDAS/Pitands" facebook page- but I may be able to send it to you, if you are interested. Edited August 22, 2014 by powpow Link to comment Share on other sites More sharing options...
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