msimon3 Posted July 24, 2014 Report Share Posted July 24, 2014 Each LLMD will have their own protocol they prefer to use, but generally an -azole like Tinidazole or Metronidazole is used to destroy the cysts. Link to comment Share on other sites More sharing options...
nicklemama Posted July 24, 2014 Report Share Posted July 24, 2014 The first IVIG helped but he relapsed. The second one did nothing. We found out about the lyme after the second one. Link to comment Share on other sites More sharing options...
FLmom Posted July 24, 2014 Author Report Share Posted July 24, 2014 I picked up the Doxy and it is only 100mg. Is that enough? Link to comment Share on other sites More sharing options...
BeeRae22 Posted July 27, 2014 Report Share Posted July 27, 2014 100% agree with Rowingmom. A LLMD will put together a protocol that attempts to kill the three known forms of Borrelia and avoid monotherapy which may lead to chronic infection / relapses. Eva Sapi has a nice study here on Doxy's performance: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3132871/ I just had this conversation with my dd's PANS doc last week, who is primarily a Lyme specialist. We don't even have a positive Lyme, (yet!) but suspect bartonella, and he has her on 3 abx to cover all bases and forms.... (dd does have MycoP, which has similar biofilms and habits as tick borne illnesses). so, with that said-- IMHO, if your son's symptoms are severe enough that you're considering traveling, not only would I have him take the doxy, but I'd try to get Zith and Rifampin or Bactrim on board, if you can get it, and something for detox. Best wishes.... Link to comment Share on other sites More sharing options...
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