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Are your PANS/PANDAS kids ever symptom-free?


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riffleshell, your son sounds similar to my son. He responded very well to abx, dx'd early, but eventually abx stopped working. We moved on to IVIG, and then a tonsillectomy over the next year following dx. It sounds like abx is failing? Which can be typical. I would consider next step..Ivig.

 

JPH, I looked for your profile, or more posts. I know you have had 30, but my computer could not pull them all up, so my feedback is limited. Only 2 weeks symptom free in 4 years? Did I read that right? Could you please qualify that? Only because while my son is doing well, he still has some residual symptoms. Like bed wetting and some ADHD, more so on the hyper side of the fence. You mention that he is doing well on homeopathic so I am wondering what that looks like.

 

If I am going to respond from what I know, it seems to me that 2 weeks of symptom free says that there is more unearthing or work to be done...

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