trintiybella Posted June 30, 2014 Report Share Posted June 30, 2014 (edited) When I add in minocycline and bactrim for the lyme and bart, my girl goes into her autistic world even more. She won't even talk when I up it. I was thinking it was yeast, so I up the amphoceterin and it does nothing. So I figured it was not yeast. I then added some valtrex and it seemed to bring her out of autistic world. I then added more minocycline and she is back in the autistic world..I think if I added more valtrex, I could bring her out again but we are highest dose. I am so tempted to see what she looks like on just the valtrex, but not sure if I should stop the lyme/bart treatment and try this. I have seen nothing good come from the minocyline and bactrim thus far, really and she has been on it for a few years on and off. I am speaking with Dr. B. on Wed. but wanted to run this by you to see if anyone has any input. Thanks! PS As I went up on the antibiotics and amphoceterin her anorexia also got really bad and it's going on 4 moths of not really eating much at all. Edited June 30, 2014 by trintiybella Link to comment Share on other sites More sharing options...
mama2alex Posted June 30, 2014 Report Share Posted June 30, 2014 It could be a herx. What are you doing for detox? Link to comment Share on other sites More sharing options...
Hrosenkrantz Posted June 30, 2014 Report Share Posted June 30, 2014 We tried bactrim, twice, per Dr. B. The reactions were so horrific, among the worst of all bad episodes 2 years (oye) of dealing with this -- like two hours from driving to the emergency room bad.I know some people would say this is a herx and you shld stick with it, detox, or maybe lower the dosage of these herx-inducing antibiotics a bit.For arguments sake -- if valtrex is helping, and it sounds like it is -- would would be the harm of just doing that and stopping the mino and bactrim? I'm stuck on the line in your message that says nothing good has gome of it even though on it for years Link to comment Share on other sites More sharing options...
trintiybella Posted June 30, 2014 Author Report Share Posted June 30, 2014 She has been on bactrim/mino for years and I really don't see much improvement from it really. Link to comment Share on other sites More sharing options...
Dedee Posted June 30, 2014 Report Share Posted June 30, 2014 Have you ever tried just one but not the other. Could be she can't tolerate sulfa drugs or maybe a huge herx from the mino because it crosses the BBB. If they aren't working though, seems senseless to continue. Dedee Link to comment Share on other sites More sharing options...
Hrosenkrantz Posted June 30, 2014 Report Share Posted June 30, 2014 I've been reading the posts recently about mino, about how it crosses the BBB. If this is one of the few abx that does this, why isn't prescribed more regularly for PANS?Just curious... Link to comment Share on other sites More sharing options...
qannie47 Posted June 30, 2014 Report Share Posted June 30, 2014 Hi Trintybella, I have no experience with Lyme, so I have no advice. But I just wanted to extend a hug...sorry things are so tough right now. Link to comment Share on other sites More sharing options...
rowingmom Posted July 1, 2014 Report Share Posted July 1, 2014 I would go with what works. That's the point after all - to help our kids function/feel better. Don't try to increase bart abx too high, too quickly. Just hold at low doses for a few months, and then increase. I have a feeling that your daughter's reactions are herxes. Link to comment Share on other sites More sharing options...
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