jferinga Posted April 21, 2014 Report Share Posted April 21, 2014 Some of you may know the story; however, the initial info: Onset was November 9, 2013. Initial symptoms were mostly repettive body movements, hopping, jumping, etc. Vocal tics starts in late December, early January. We compiled a complete list of behaviors, 30 in total on a daily basis. We were seen at the NIH December 13, 2013. We never had a positive strep test except in January/February 2011. Our child had pneumonia in December 2010. In 2011, her brother was diagnosed with rheumatic fever and her otitus media. February 2011, she had a positive strep test. From March 2011 to June 2011 she had recurrent ear infections diagnosed as otitus media. We treated with Augmenting, 2000 mg per day for 20 days, then Azithromyacin, 100 mg per day as a prophylaxis. We also used olive leaf extract, with 18% oleuropein, December 2013 through current with dosing was 2-3 times per day. We also started a liquid multivitamin called Calm in December. We does this 2x per day, recommended dosing was 1x per day. April 2014 we we stopped antibiotics and lowered the vitamins to 1x per day. Our pediatrician at Kaiser was very unsympathetic and woudl not help in the beginning. The pediatrician's sister-in-law had her two grandchildren diagnosed with PANDAS. We have given the pediatrician lots of research over the months. The pediatrician finally changed teh diagnosis to "autoimmune" and dropped the OCD/TIc disorder. Link to comment Share on other sites More sharing options...
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