P_Mom Posted April 11, 2014 Report Share Posted April 11, 2014 HI! I have been gone from this forum for years, but, received an email notification that I was sent a pm! Imagine my surprise. So I browsed a bit and found this. I will just briefly say that I have (had ) two PANDAS boys. Onsets age 4 (severe) and 7 (mild/moderate). This happened after they both had strep in August 2007..... onsets were weeks apart. Our world was turned upside down....to put it lightly. Fast forward 7 years. Ages 11 and 14 now and BOTH sons are absolutely thriving......not even the most seasoned PANDAS parent would ever guess in a zillion years either of my sons ever had an issue. Hang in there. Time is your biggest healer. MaureenL 1 Link to comment Share on other sites More sharing options...
ibcdbwc Posted April 11, 2014 Report Share Posted April 11, 2014 P-Mom, what treatments did you use? MaureenL 1 Link to comment Share on other sites More sharing options...
P_Mom Posted April 11, 2014 Report Share Posted April 11, 2014 Abx., t/a removal, steroids twice for younger son (which were amazing) That is it. I'd give them a multi vitamin, fish oil and probiotics a few times a week too. MaureenL 1 Link to comment Share on other sites More sharing options...
qannie47 Posted April 12, 2014 Report Share Posted April 12, 2014 (edited) p mom Thanks for sharing! These success stories truly transcend hope. While I had great success with IVIG as you all know. I truly felt like it was the t/a that was as important, if not more beneficial then even the IVIG. Edited April 13, 2014 by qannie47 P_Mom 1 Link to comment Share on other sites More sharing options...
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