ktdommer Posted March 30, 2014 Report Share Posted March 30, 2014 Yesterday my youngest with Lyme and PANS did his first IVIG treatment. He did well with only a slight headache. Today he says he feels no different. He is approved by insurance for 5 more treatments- one a month I have read everything I can about IVIG, and I think what it comes down to is that everyone responds differently. I want some clear cut prognosis and I don't think I'm going to get it. I'm worried though that because of his age and length of infection, 18 years, he may respond slower. He may have had PANS for 4 years. Diagnosed last month. I was pursuing IVIG for beaten down immune system before I even knew what PANS was. What facts, information am I missing that would give me hope? Thanks everyone, Kari Link to comment Share on other sites More sharing options...
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