BeeRae22 Posted March 3, 2014 Report Share Posted March 3, 2014 Hello, Some of you may remember my posts from awhile back regarding my daughter. Her onset of Pandas/Pans started in October. She is now being treated with abx by Dr. M and we have seen a huge improvement with all of her symptoms except for the eating piece. She is 8 years old. She is not restricting calories, is not afraid of weight gain, and does not have a distorted body image. She is afraid to eat-- fear of choking and swallowing. At one point, she went to a completely liquid diet, but is now at a point that with much whining, gagging, complaining, running away from the table, and lots and lots of time, I can (sometimes) get her to eat several bites of certain foods. I am incredibly frustrated and feel completely alone dealing with this. I have not been able to connect with a single person, professional or otherwise, that has dealt with this particular issue. I was contacted by someone on this forum who's daughter had eating issues, but they were dealing with the "typical anorexia" symptoms which is very different from what we're dealing with. We were taking her to OT for awhile, but I didn't feel like we were getting any further with that than we were here at home. I've sought out psychiatrists and therapists that have dealt with this, with no luck. I just don't know what to do anymore. She will drink Boost now, and with all of my efforts has regained about a pound and been maintaining that, (after a 3-4 pound weight loss) but she can't live on Boost forever! We are waiting for a huge run of bloodwork to come back to Dr. M's office. I am anxiously waiting to hear those results. However, the results aren't going to cure her. Isn't there anyone out there that has dealt with this before????? What am I supposed to be doing? I've considered dropping everything in my life, and everything in my son's and husband's lives, and my daughter's, to commit to sitting down with her for hours a day to get her to eat, because at the moment, that's what it would entail, but I'm not convinced that any amount of doing that would cure her either.......... and could potentially do more harm than good also?! There has to be someone out there that could help. I wish I could find them. Link to comment Share on other sites More sharing options...
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