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Hey Lymies - anyone with shoulder pain?


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Daughter has been dealing with a shoulder injury since early January. Had x-ray which was normal. Moved on to an orthopedist two weeks ago. He put daughter in sling, which she absolutely hates, and hasn't been wearing it 100 percent like she supposed too. Today I had to pick her up from school because she said the bone came out of the socket and popped back in. Very painful. Its what happened when this all started too. She did have the sling on all day. Nothing specific caused it to pop out. And nothing specific caused this injury. I thought maybe she slept on it wrong, when it all started. Now wondering if its related to the lyme or bart. She is still testing positive, and began a new abx protocol in November. Anyone else have complaints of shoulder coming out of socket?

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FWIW DS12 complains of joint pain and popping during PANS flares. And Dr. T has seen association with PANDAS/PANS (assuming lyme too) with Ehlers Danlos syndrome which by definition results in unstable joints. But I would also assume that chronic inflammation resulting from Lyme infection would cause problems with connective tissues too- and of course healing in general.

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My daughter's knee does that, as well, which is very hard because she plays tennis and does a lot of dance in theatre. Popped out for no obvious reason a few times and not when she was playing tennis or dancing. She was also being treated for Lyme, bartonella, and mycoplasma but I have no idea if it is related. I did read (research junkie that I am) that dopamine levels affect hypermobility in the joints and she is a ++COMT so I expect it has something to do with it. Sorry I don't know more but I have been curious, as well.

QueenMother

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No dislocations here, but lyme likes joint and tendon tissues, especially weakened ones. The bacteria require HA and glucosamine, so they gravitate to joints causing tissue destruction and inflammation to release these nutrients. I'm not suprised that your daughter could have joint involvement.

 

DD's once positive (now negative) ANA (speckled type) is indicative of autoimmune collagen tissue involvement, so she was probably dealing with some joint/tendon/ligament destruction as well, only she wasn't symptomatic.

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Well you know we've been dealing with these infections for years, and had/have our share of migrating pain. Usually its more diffused. Had a year or more of tingling pain in arms and legs, but no longer an issue. Had leg pain - erythema nodosum. A lot of weird off/on pains that couldn't really be explained. ANA is positive for 2+ years now - since Nov 2011. Have LLMD appt this weekend - will bring it up with him. I'm wondering if its a herx from new antibiotic. Thx

Edited by philamom
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All very interesting since I have had 4 ruptured discs in my Neck and Drs have a hard time believing me when I tell them I didn't do anything to cause it. I did find relief with high amounts of fish oil. Maybe the Omega 3's we are all so deficient in brings down the inflammation.

 

I have also read (info junkie too), that scoliosis can be caused by a viral infection. My non PANDAS and very athletic son got back problems at the same time as chronic fatigue. He didn't have the strep but his HHV-6 was 20x higher than normal. Makes you wonder.

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What gets me mad is that she saw two doctors since January 10th for this issue, and I was too afraid to mention that I'm treating her for lyme. When asked if she is taking any medicine, I said no - just some vitamins and supplements. The doctors are part of the big hospitals in Philly area, and I know they don't stand behind chronic lyme or pandas/pans. I'm always concerned about what is happening at Boston hosp. So now I'm jeopardizing her health by lying :( I'm also paranoid after fighting a 3 year battle with my daughter's school district regarding my daughters diagnosis and treatment, even though she has labs to support her infections.

 

In my own happy world, I would have a specialist to confide with in each needed area. I'm glad were seeing our llmd this weekend. I had to cancel twice already due to snowstorms - so little behind. He will be mad that I wasn't upfront with the orthopedist.

Edited by philamom
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This article is about how researchers in a Danish study found that when a disc becomes herniated, bacteria can enter and cause an infection. Some patients have been successfully treated with abx. The article is specifically about chronic lower back pain and herniated discs, but I have to wonder if the same thing can't happen in weakened joints. Hmmm...

 

http://www.dailymail.co.uk/health/article-1249524/Could-virus-caused-pain--And-simple-dose-antibiotics-cure-good.html

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http://www.rxlist.com/doryx-drug.htm

 

Doryx is slow release doxycycline, so no it's not a fluroquinolone antibiotic.

 

We haven't seen a mainstream allopathic doctor since DD started treatment. Our LLMD is as close as they come. I often wondered when she was on multiple/combo abx what I would say if I had to take her to a hospital. Sure glad that didn't happen.

 

Now I can just say "some herbal supplements" and not draw much attention.

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Could Lyme be causing inflammation at the site and with therapy moved it around to the central nervous system? Lyme can appear with neck or back injuries after aggravation.

 

Rowingmom you gave me a clue for myself. I was on the floruquinoles last August and had horrible shoulder pain. I went to an acupuncturist and it changed the pain up my neck. It feels more like I hit it on cement and not a ruptured disc. Also some days it is mild and it felt better when I was on an antiviral for shingles.

 

I thought tendonitis after what you said but I wonder if the medicine broke down cellular walls of something else.

 

The good news is my brain isn't as foggy..What a trade off!

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