mdmom Posted February 14, 2014 Report Share Posted February 14, 2014 Thank you all for the ideas you have shared with me regarding my daughter's headache. Just to review, she developed an unrelenting headache on 11/16/13 and up until last week no doctor has been able to find the reason. Her pain spiked last week and she was admitted to the hospital. Some smart pediatrician thought to look in her eyes and saw optic nerve involvement. Opthamologist confirmed papilledema (swelling of optic nerves), MRI (2nd one this month) showed nothing. So they did a lumbar puncture and she had an opening CSF pressure of 48cm. Highest pressure the docs have ever seen in someone her age and size. She is 14. Newest dx is Idiopathic Intracranial Hypertension (IIH). They are hoping to manage it with meds, as it can be a chronic condition but surgical intervention may be needed if the headache and vision implications can't be managed with meds. We now have a pediatric neurologist and a pediatric neuro-opthamologist on her case. After 3 years of treating co-infections and getting a lot of criticism for the LLMDs protocols from mainstream docs including the new docs on her case, they all are suspecting Lyme caused this. Is that irony or what? Now the plot thickens....she has an active Brucella infection confirmed by 3 blood tests in the last 3 weeks. She also has a staph infection confirmed by 2 blood cultures. I also found a sphenoid sinus culture lab result from Nov. 2013 that showed staph in her sphenoid sinus, which the ENT considers normal. Her primary care doc, the neurologist, neuro-opthamolgist and LLMD all agree that she needs to be treated for the Brucella. But no surprise, no doctor would touch the infection but the LLMD. While all of the 3 mainstream docs twiddled their thumbs this past week and waited for someone to treat her infection, my LLMD already had ordered the IV meds to treat it and had them delivered to my house. This is the very same scenario that made me leave the mainstream medical world and go off the beaten path to our LLMD. So many mainstream docs will pass the buck. The staph she has in her blood is coagulase negative staphylococcus and it's the same bacteria that was found in the sinuses. According to dr. Shoemaker, this is MARConS. She is being treated now with IV Vancomycin for Brucella and staph. And now we wait for the idiot mainstream doctors now involved to try and figure out the reason for the IIH. LLMD thinks it is caused by the Brucella (many medical articles have been written about this connection) but I wonder if the staph in her sinuses could have leaked into her bloodstream and/or CSF and caused the intracranial hypertension. Does any of this make sense to anyone out there? I would love your opinions. Link to comment Share on other sites More sharing options...
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