Need information for insurance company for IVIG review

[Thesuzie]

Hello. My union rep has requested verification that IVIG is the necessary treatment for Pediatric Autoimmune Encephalopathy. She requested documentation that is not too involved or complicated that can be easily cited. I have a letter from the Dr, but need to back it up with documentation. DD is also dianosed with CVID. She has been on augmentin, Azith, and bactrim for 6 months with no improvement. Newest symptom are tremors, we are desperate. Apparently, as a government employee we are self insured and with approval of our board, I do not have to wait for BCBS to review. Thank you!

[JoyBop]

I believe there should be a lot of accepted literature on the use if IVIG for Cvid. There is not really any hard data that has been accepted as standard treatment yet for pandas or autoimmune encephalitis. Can you go down the list infectious path? Although many insurance companies are now banning the post infectious diagnosis for coverage of IVIG. M suggestion would be to use Cvid and play down the pandas.