Jump to content
ACN Latitudes Forums
  • pandas-cover-cropped.pngYour Child Has Changed; Should You Consider PANDAS?

    Have you seen our PANDAS eBook?  Our book is a helpful primer in a friendly question & answer format.  This eBook contains useful information to understand the symptoms of PANDAS, how it is diagnosed (including lab tests), the different types of treatments, approaches for prevention, and how to find the help and support that you need.  Your satisfaction is guaranteed. Learn more

Sign in to follow this  
Teri

Awaiting the results of our latest labs ...

Recommended Posts

Good morning all,

 

Just wondering if anyone can shed some light on our current situation. Dd7 has PANDAS/Bart/LYME/ Myco - dx with PANDAS 2 years ago with the Lyme & Bart dx coming about 8 months later. Still trying to get her back to baseline. Our latest flare I think was caused by a stomach virus. We saw tics and behaviors come before the bug. She then had a strep exposure at school. We are on Day 11 of a steroid taper.

She is currently on a combo of Rifampin, Cefdinir, & Cipro plus Nystatin, Florastor. She had daily dosing of Motrin during the flare plus Benadryl at night. By day 7 of the prednisone taper we had to start giving Motrin again.

 

My labs have repeatedly come up with high ASO & rising myco despite the following abx - 30 days Keflex, 60 days Cipro, and most recently 30 days of Doxycycline & Rifampin combo. I think my strep titres dropped from 574.5 to 557 after the combo abx.?? Myco went from 368 to 610.??? Now doing another 30 days of the same combo.

 

Thinking Dd has high Myco again despite all the abx?? How can that be? She has been on abx for 2 years daily - and a combo for about 16 months. Also anyone know why I can't bring down my strep and/or Myco numbers. Wondering where we go from here??????????

 

Any thoughts appreciated!

 

Teri

Share this post


Link to post
Share on other sites

Did you test for viruses? If they remain high the immune system can't catch up.

 

Have you addressed diet? The food in our diet that has been genetically altered (GMO) automatically creates inflammation making the immune system work that much harder. Think of it as running a Marathon with weights on your ankles.

 

When we finally addressed diet ( it didn't happen overnight) the antibiotics/antivirals were able to do their job and we became stable.

Good Luck.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
Sign in to follow this  

×
×
  • Create New...