Cleopatra Posted December 26, 2013 Report Share Posted December 26, 2013 "I am also not looking for a one on one aide. That would be an awful thing to make the child dependent on another person. I am simply asking for a an aide to placed in the classroom to help the teacher. How can she be expect to teach my child or any other child if my child is on the floor 20 times in a 45 minute period." Joybop ~ My dd's Special Ed atty. was free because it was based on income and since I can't work due to dd's PANDAS, I qualified easily. She missed all of 2nd grade last year due to her disorder. Made it to 1st day of school and that was the end of it. She couldn't be tutored until February, even though her HHB began in December, because she was debilitated by her disorder. She was passed through from 1st to 3rd grade without ANY assessments or evals by the school. After treatment, I got her on dual enrollment in April, just to try to transition back to school (physically get her in the building due to her extreme anxiety). That took 6 weeks and failed miserably. The reason was, and I was able to see it during that 6 week process of pain, that it wasn't anxiety causing the problem. It was the cognitive deficits and executive function issues that were overwhelming dd resulting in anxiety, increased OCD and tics! Thank god I went with her and sat through those classes (not that she would let me leave her!) and saw that something else was going on. I got her a neuropsych evaluation which revealed all her issues in incredible detail including a 59 point drop in IQ from 160 to 101! (*yes, all children drop in IQ level when testing is done at an early age, but, even if 30 points is average, another 30 is EXTREME!). The school accepted this eval and it finally got them to sit up and take notice. This along with the special ed atty got my dd into a pre-trial conference and a got her a para 3 days later. Joybop ~ the reason I copied your comment at the top of my post was to respond and say that you are incorrectly assuming that having a one on one para would MAKE a child be dependent on them. On the contrary, without a para my dd couldn't function in school at all. She couldn't get past the first 15 minutes each day if she didn't have the para to unpack her bookbag, turn in her homework, put her bag on a hook, get out today's books, copy the posted work from the whiteboard into her weekly planner, etc. and organize her. Her short term memory is shot, so, she can't remember simple instructions and can't be given more than one at a time. Of your ds takes 1/2 hour to get packed at the end of every day and ends up on the floor 20x a day, then, I would strongly suggest getting a neuropsych eval and a dedicated para to support your child's needs. My dd is the only child out of 800 in her school with a para, and yes, it's not what anybody wants for their child, but, may be what they need. Her para does her best to foster independence while constantly being available to my dd. Jferinga~ my dd is currently being assessed for an FBA in order to determine need for service and I just don't get it at all. I don't see how a behavioral plan can help with medically driven cognitive deficits and behaviors. My atty just kept agreeing that they have to do this. There's nothing they can come up with that will fit my dd's situation. It seems like the SChool District is on autopilot here regardless of what is known about dd's PANDAS disorder. Cleopatra 1 Link to comment Share on other sites More sharing options...
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