Jump to content
ACN Latitudes Forums

Really Confused


cara615

Recommended Posts

WOW!! Thats amazing! I think the proof is in the pudding! Im not sure what more the titres are going to prove though given the fact that you already found the positive strep infection. High titres certainly won't hurt, and might prove hes not a carrier, however he already had at least one negative swab in the recent past.

 

I suppose if he responds well to abx that will be the defining factor. I wish our doc would give us IV IG just like that!

Link to comment
Share on other sites

Amoxi is not particularly effective on strep. My friend with 3 kids, no pandas, cannot clear strep in them on amoxi. Your description sounds exactly like PANDAS/PANS. Rising titers of strep does not prove PANDAS. It shows where your child is infection wise. A percentage of the population never even have titers to strep when infected. My son has never had strep titers or a positive throat culture. He has PANS rather than PANDAS. my son has been on antibiotics for 3 yrs without a break. We have addressed methylation and other things but those don't get him close to 100% functioning. In flares, the recommendation is 30 days of treatment with abx and prophylactic dosing until post college if living in a dorm type setting.

Link to comment
Share on other sites

One other thing I want to mention. With TS, starting a new school and a new grade are HUGE triggers for tics. Many kids with TS report waxing symptoms when school starts. For my son, his tics actually remained very low through the first day of school and all the way up till the 1st week in November. Again, another indicator that this this not the typical garden variety TS.

Link to comment
Share on other sites

What a great post. Thank you! it really explains a lot of things and puts into perspective how elusive this "disorder" really can be.

 

To me, a sharp increase in tics associated with a STREP infection and then subsequent resolution in response to abx is proof enough that we are dealing with a PANDAS kid.

 

Today is day 4 on abx and slowly, very very, gradually, we are seeing improvement. Nothing drastic yet but so far its been better than yesterday. I'm forging ahead....

Link to comment
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
×
×
  • Create New...