kc35 Posted October 24, 2013 Report Share Posted October 24, 2013 My DD6 who started off with tics, now has lots of OCD. This really picked up this Sunday which is about 1 week after she finished a 5 day course of az for possible walking pneumonia. I am still in the process of trying to figure out whether this is PANS/PANDAS. I am doing strep titre, myco IgG and IgM, and Lyme IgG and IgM on Saturday. Now she has to go up and down the stairs a number of times to get the feeling right. She has all these weird feelings to do weird things like touch things, repeat things, have me repeat things. I called the CBIT person we saw a week ago who said this is OCD. I have an appt with her at end of November but I may be able to move it up if need be. When we saw her last week, my DD was just off abx and not ticcing much and very low level OCD. So our meeting with the therapist wasn't too useful. My DH thinks that by talking about these feelings that is what is causing my DD to have more feelings. Is that possible? I called Dr. T in NJ, Dr. B in Ct and Dr. M in Fl. Dr T would do a phone consult and I may do that after I get the lab results. Dr B and Dr M are booking into April . Dr M only takes on certain patients.I I made an appt with Dr. L in OH for mid November. Has anyone worked with him? In the meantime what should I be doing? Should I take her to CBT sessions or will that make things worse? Should I be doing gfcf diet? I have been introducing more gf food and keeping the dairy low but it is not helping. Supplements? If this is PANS/PANDAS do things just keep getting worse until they are treated with long term abx? Does lyme disease cause OCD type symptoms as well? Any advice is greatly appreciated. Link to comment Share on other sites More sharing options...
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