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NIH PANDAS study participants -- what is your kids status today?

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we did have trouble with insurance paying for MTHFR. I would recommend you fully understand your insurance policies before having the test. ours was doctor ordered -- still refused. through labcorp or quest, the test is $400 something w/o insurance negotiated rate. you can get it for much cheaper over labs through the internet.


I am still fighting with insurance. just be sure you fully understand policies when making your decisions.

Edited by smartyjones
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Our doc ordered it as well. I received the letter stating it was not covered, but have not received a bill yet. This test was ordered with about 45 other tests, which also are not yet resolved through the insurance for various reasons. This will likely drag on for a while since it has already gone on since April. I have yet to even contact the insurance.

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