pr40 Posted October 14, 2013 Report Share Posted October 14, 2013 LDN is low dose naltrexon. It is used against many auto-immune conditions and I am wondering if anyone here has experience with it. It works by increasing (?) endorphyins. the latest study is here http://www.cortjohnson.org/blog/2013/02/12/successful-low-dose-naltrexone-fibromyalgia-trial-points-to-safe-low-cost-therapy-implications-for-chronic-fatigue-syndrome/ If PANDAS has an auto-immune component, regulating endorphyins could be helpful. Link to comment Share on other sites More sharing options...
Mayzoo Posted October 14, 2013 Report Share Posted October 14, 2013 Here are search results (I hope it shows here) from another forum (AutismWeb) about LDN usage: http://autismweb.com/forum/search.php?keywords=LDN&terms=all&author=&sc=1&sf=all&sk=t&sd=d&sr=posts&st=0&ch=300&t=0&submit=Search Some PANDAS kids are on the spectrum, so it depends on what information you are looking for. Link to comment Share on other sites More sharing options...
frikfrak Posted October 14, 2013 Report Share Posted October 14, 2013 Hi, My DS (23) has been on it for a year, 4.5 mg., haven't seen any improvements. Sorry. But I have heard where people find it helpful, just not us. Link to comment Share on other sites More sharing options...
Recommended Posts
Create an account or sign in to comment
You need to be a member in order to leave a comment
Create an account
Sign up for a new account in our community. It's easy!
Register a new accountSign in
Already have an account? Sign in here.
Sign In Now