Jump to content
ACN Latitudes Forums
tenyearswithpans

Stimulant succes?

Recommended Posts

I am not being treated for my pans right now and used adderall. It helped me so much more than any other medication. Though I've built a high tollerance extremly fast. I stopped it for 4 days to try to reduse tollerence and immdediatly the next day had terrible paranoia, vivid disturbing dreams and loss of reality. My doctor said it was withdrawl psyhcosis affect from the stop so her is trying vyvanse as I requested. I'm starting it the 17th.

 

Did anyone have good effects with other stimulants besides adderall? Please share your of your kids experiance.

Share this post


Link to post
Share on other sites

Our son had some attention issues, as well, particularly during the height of our PANDAS journey. However, as his primary behavior set was anxiety-related and OCD, his psychologist felt that any stimulant was a bad idea . . . that it would rev up the anxiety and OCD and make those issues much more difficult to control.

 

We tried a non-stimulant ADD/ADHD med for a bit: Intuniv. Intuniv and Straterra -- both non-stimulants -- have been used by a number of PANDAS/PANS families. We thought it helped initially, but then the benefits seems to wane over time, so we ceased the medication. In the end, it seemed his ADD-type behaviors were more related to his anxiety than they were actual "freestanding" attention issues, and so when the anxiety was under better control, so was his ability to remain focused and pay attention. At present, we supplement with zinc, which seems to help in that regard without any side effects.

 

I think if you search the PANDAS forum, you'll find some threads that discuss vyvnase.

Share this post


Link to post
Share on other sites

Thank you :). I have tried strattera any had no reaction to it. If you could please send me a link to the other one I would greatly apprechiate it. I am now recently having memory issues like forgetting how to spell simple words and meanings of some elementary middle school words even. Of course keys, dates, and what I was about to do for left something.

 

Do you know when the inflamation goes down if it helps in anyway? Still trying to find a doctor in buffalo area that accepts pans disorder

Share this post


Link to post
Share on other sites

The Saving Sammy website has a state-by-state list of doctors who recognize and treat PANDAS/PANS, so that might be the most immediately helpful to you. Still, if possible, you might need to travel a little bit, though some (like Dr. T.) will also do telephone consults.

 

http://www.savingsammy.net/providers.php

 

Yes, I think generally decreasing the inflammation helps; however, keeping the inflammation down consistently requires addressing the cause of the inflammation . . . otherwise, you can't stay ahead of it sufficiently.

 

Just also, short term memory issues are also a common component in PANDAS/PANS. It may be another result of inflammation, and/or it may be a reflection of the imbalance of glutamate in the brain, too. Have you done any reading on that? Since they're finding that extra-cellular glutamate may play a role in a variety of psych disorders including schizophrenia and Alzheimer's, addressing glutamate modulation may help you in a number of facets of what you're facing. Have any of your doctors ever suggested any of the glutamate-modulating drugs such as memantine or lamictal?

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now



  • Announcements

    • Administrator



      Forum Community Guidelines

      Our forums provide support for people dealing with neurological and related issues. Everyone joining this community should find it a safe haven where they are treated with respect, civility, and understanding.

      Your agreement as a user: You agree that you will not use this forum to post or send messages that are knowingly false, inaccurate, abusive, vulgar, obscene, profane, or sexually oriented. Text should not be defamatory, harsh, accusatory, intimidating, slanderous, an invasive of a person's privacy, or violate any law. Doing so may lead to you being banned (and your service provider may be informed). The IP address of all posts is recorded to aid in enforcing these conditions. You agree that the webmaster, administrator, and moderators of this forum have the right to remove, edit, move, or close any topic at any time should they see fit. You agree not to post any copyrighted material unless the copyright is owned by you or by this forum/website. Advertisements, solicitations for services or business, most research requests, as well as any type of research on the content of these forums by third-parties, are prohibited. Unauthorized use or reproduction of posts on these forums is not allowed. Any user who feels that a posted message is objectionable is encouraged to contact an administrator.

      Announcements, media requests, and research requests

      These need administrative approval. Please send to an administrator before posting.

      Inappropriate content

      Members are here for support and education. Check the list below for types of posts that are not allowed: Advertisements Flames or messages meant to intimidate, criticize, or harass others Threatening or obscene messages Messages discussing a private message (PM) from others Copyrighted materials that you do not own the rights to, except educational or research articles Messages containing or condoning illegal acts; also messages of suicidal intent Direct discussion of politics (please avoid) Specific or strong religious views Requests for donations for other organizations unless approved by administrator Solicitation of members for research, media projects or other projects, without prior administrative approval About links for other websites:

      You may have links in your profile as long as they do not violate our guidelines (above). Links within a post to online resources and articles are generally OK. Do not post links to other forum communities with the aim of soliciting other members to that community, thereby taking them away from this community.

      When a guideline is violated

      If you violate a guideline, you will be contacted by PM or email. We will try to resolve things amicably. We don’t like to ban members and rarely do, but this is an option.

      Updated March 19, 2010
    • Administrator



      Disclaimer

      The ACN Online Discussion Boards are intended to provide helpful information and allow sharing of ideas. Postings should not be considered as medical advice. All users should consult with their healthcare professional for questions or medical decisions.

      Users must accept full responsibility for using the information on this site and agree that ACN, Latitudes.org, advisory staff or others associated with the site are not responsible or liable for any claim, loss, or damage resulting from its use. Please remember that we do not actively monitor all posted messages and cannot be responsible for the content within. We can also not guarantee that access to the site will be error-free or virus-free.

      Reproducing any document in whole or in part is prohibited unless prior written consent is obtained. Web pages may be shared when passed on with the URL.

      Information posted on the Forum is done so voluntarily and will be accessible to the public. The material posted may be used by ACN (without the identity of the user) for publications or educational purposes. No compensation will be provided for the use of this material.

      Note: ACN is providing this service with the expectation that users will abide by the guidelines provided. We reserve the right to monitor postings and remove or refuse inappropriate and questionable material, as well as remove dated postings at our discretion, for any reason.

      Privacy Policy

      When you register with the Forum, you need only give your email address, which is available only to the Adminstrators and will not be shared on the Forum site or with others in any format. Forum users will see only the user name you choose to provide.

      Our web server collects and saves default information logged by World Wide Web server software. Our logs contain the date and time, originating IP address and domain name (the unique address assigned to your internet service provider's computer that connects to the internet), object requested, and completion status of the request. We use these logs to help improve our service by evaluating the "traffic" to our site in terms of number of unique visitors, level of demand, most popular page requests, and types of errors.

      You have the option of enabling to save your username and password data when you are accessing interactive parts of our websites, to allow your web browser to "remember" who you are and assist you by "logging on" without you having to type your username and password repeatedly. This is known as a cookie and it can be enabled or disabled in your control panel. Cookies are small files stored on your computer's hard drive that are used to track personal information.

      Except for authorized legal investigations, we will not share any information we receive with any outside parties.

      Updated March 19, 2010
  • Help us learn if blood type has a correlation with PANDAS/PANS   78 members have voted

    1. 1. If you are the biological mother of a child diagnosed with PANDAS or PANS (or you believe the child has PANDAS or PANS), please select your blood type below:


      • O +
      • O -
      • A +
      • A -
      • B +
      • B -
      • AB +
      • AB -
      • I Don't Know

    Please sign in or register to vote in this poll. View topic
×