Jump to content
ACN Latitudes Forums
  • pandas-cover-cropped.pngYour Child Has Changed; Should You Consider PANDAS?

    Have you seen our PANDAS eBook?  Our book is a helpful primer in a friendly question & answer format.  This eBook contains useful information to understand the symptoms of PANDAS, how it is diagnosed (including lab tests), the different types of treatments, approaches for prevention, and how to find the help and support that you need.  Your satisfaction is guaranteed. Learn more

Sign in to follow this  
4Nikki

Antibiotics

Recommended Posts

After DD initial onset 5 months of episodes and first prescription of Amoxicillin she cleared up for 2 months. Then the episodes came back. 10 days of Augmentin caused rages on a cycle. Been asking PCP to prescribe at least 30 days Amoxicillin buy Dr. is Afraid. Why?

Share this post


Link to post
Share on other sites

why is dr afraid? because there is a campaign to prescribe less abx. the assumption is that our current practice is creating super bugs and pcps are supposed to be gatekeepers.

i am not sure that you can say with certainty that augmetin caused rages. there may be a coincidence btw augmetin and rages because of the effect that augmetin has or it may be a herxing

Share this post


Link to post
Share on other sites

Your physician is afraid because he / she is not PANDAS / PANS literate. If he was educated on proper treatment he would understand that your daughters brain is under attack and not hesitate to do what ever is necessary to protect it from further insult. The rages may or may not be caused by the antibiotic. It could be the course of PANDAS playing out or a herx, which is the release of toxins as the bacteria die off. You need to continue antibiotics and treat in the event of a herx. Do a search on this forum for herx and you will find some good remedies. Make sure your daughter is getting plenty of fluids to flush any toxins. If things don't settle down after a week or two you may consider trying a different antibiotic. You are right to assume that 10 days is not enough. If your physician is not helping, find someone who will. You are going to need a PANDAS / PANS specialist. Go ahead and make an appointment. You can find some names on the pandasnetwork.org page. This is not something you will be able to manage without an educated physician. As a general rule, things get worse with each infection untill you can get a manageable plan. Best of luck.

 

Dedee

Edited by Dedee

Share this post


Link to post
Share on other sites

why is dr afraid? because there is a campaign to prescribe less abx. the assumption is that our current practice is creating super bugs and pcps are supposed to be gatekeepers.

i am not sure that you can say with certainty that augmetin caused rages. there may be a coincidence btw augmetin and rages because of the effect that augmetin has or it may be a herxing

Share this post


Link to post
Share on other sites

Your doctor is probably afraid to treat outside the ISDA guidelines which aren't in agreement with the extended use of antibiotics. The use of protocols which don't adhere to the guidelines can cause the doctor's practice to come under scrutiny.

 

Lyme Literate Doctors and PANDAS specialists deal with this possibility on a daily basis. That is why we don't mention doctor's full names on the forum. These are the only doctor's willing to put their practices on the line for our children.

Edited by rowingmom

Share this post


Link to post
Share on other sites

Your physician is afraid because he / she is not PANDAS / PANS literate. If he was educated on proper treatment he would understand that your daughters brain is under attack and not hesitate to do what ever is necessary to protect it from further insult. The rages may or may not be caused by the antibiotic. It could be the course of PANDAS playing out or a herx, which is the release of toxins as the bacteria die off. You need to continue antibiotics and treat in the event of a herx. Do a search on this forum for herx and you will find some good remedies. Make sure your daughter is getting plenty of fluids to flush any toxins. If things don't settle down after a week or two you may consider trying a different antibiotic. You are right to assume that 10 days is not enough. If your physician is not helping, find someone who will. You are going to need a PANDAS / PANS specialist. Go ahead and make an appointment. You can find some names on the pandasnetwork.org page. This is not something you will be able to manage without an educated physician. As a general rule, things get worse with each infection untill you can get a manageable plan. Best of luck.

 

Dedee

With regards to herx , i skimmed a little of this page https://chronicillnessrecovery.org/index.php?option=com_content&view=article&id=161

 

Have you heard if anyone has tried using the hyperbaric chamber to assist this?I would have thought any doctor familuar with herxing and detoxification would have thought about using the HB as an assistant?

Share this post


Link to post
Share on other sites

Our doctor prescribed augmentin last September. His behaviors became worse than any Pandas episode. He kept insisting it was bacterial die off. After 2 months, the doctor switched abx, but our son has never been the same.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
Sign in to follow this  

×
×
  • Create New...