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There is going to be a PANS/PANDAS conference in Providence RI November 9 and 10 featuring top specialist from across the country. This 2 day conference is being hosted by the NE PANS/PANDAS Parent Association which I am a part of. To learn more about the conference and to register, please visit our website at www.nepandasparents.com There is only room for 400 attendees and we have already sold more than 200 seats. So if you are interested in attending I urge you to register. You do not want to miss this incredible opportunity.

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I am excited to be attending!

For all those who live in the Northeast, this is an opportunity to hear about cutting edge research and treatment. I've taken the liberty to past the schedule and link for anyone who wants to go. This program is open to the public.



Saturday, November 9, 2013

7:30 – 8:15 a.m. Breakfast/Opportunity to Network

8:15 – 8:30 a.m. Opening Remarks

Northeast PANS/PANDAS Parents Association founding members present conference survey results

8:30 – 8:45 a.m. Welcome

Diana Pohlman, Founder & Executive Director, PandasNetwork.org

8:45 – 9:30 a.m. From PANDAS and PITANDS to PANS: Recognizing and Treating Acute-onset Obsessive Compulsive Disorder in Children

Susan Swedo, M.D., Chief of the Pediatrics and Developmental Neuroscience Branch (PDN) in the intramural research program at the National Institute of Mental Health (NIMH)

9:30 - 10:15 a.m. Elucidating mechanisms of immune cell entry into the brain and blood-brain barrier damage in an animal model of recurrent intranasal Strep infections

Dritan Agalliu Ph.D., Assistant Professor, Developmental & Cell Biology, School of Biological Sciences, UC Irvine


10:15-10:30 a.m. Break


10:30-11:15 p.m. The Spectrum of Illness in PANDAS-PANS: There is no One-Size-Fits-All Treatment

Beth Latimer, M.D. Pediatric, Adolescent and Adult Neurologist

11:15 - 12:15 p.m Question and Answer Panel

Dritan Agalliu, Beth Latimer and Susan Swedo

12:15–1:30 p.m. Lunch

1:30–2:15 p.m. Mechanisms of Pathogenesis and Treatment in Autoimmune Neuropsychiatric Disorders

Dr. Kyle Williams, M.D. Adult and Child Psychiatry, Yale Child Studies


2:15–3:00 p.m. Unlocking movement and neuropsychiatric disorders in children

Dr. Madeleine Cunningham, PhD., Co-Founder and ChiefScientific Officer, Moleculera Labs

3:00- 3:15 p.m. Break

3:15-4:00 p.m. What 700 Families have Reported About Their PANDAS-PANS Child: NOW Where is Treatment Headed For Our Children’s Future?

Diana Pohlman, Founder & Executive Director, PandasNetwork.com

4:00-5:00 p.m. Question and Answer Panel

Madeleine Cunningham, Diana Pohlman and Kyle Williams

5:00 - 7:00 p.m. Reception (optional, not included with conference price)

Sunday, November 10, 2013

8:00- 8:15 a.m. Opening Remarks

NE Pans/Pandas Parent Association Members

8:15-9:15 a.m. – The neurobiological basis of PANDAS/PANS - scientific and clinical perspectives

Rosario Trifiletti, M.D., Ph.D


9:15– 10:00 a.m. - A Comprehensive Integrative Medicine Approach to Neuroimmune Disorders (PANDAS/PANS)

Dr. Kenneth Bock, M.D., Founder, Bock Integrative Medicine

10:00-10:15 a.m. Break

10:15-11: a.m. Immune dysfunction and modulation in PANDAS

Dr. Jolan Walter, M.D., PhD, Massachusetts General


11:00-11:45 p.m. Applying Exposure and Response Prevention to Youth with PANDAS

Dr. Jamie Micco Ph.D., MGH Child Cognitive Behavioral Therapy Program

11:45-12:45 p.m. Lunch Break

12:45-1:15 p.m. Recovery Stories

Megan Greenstein and Malia Ott

1:15-2:00 p.m. Medication and Behavioral Modification

Peggy Chapman


2:00-2:45 p.m. Treating LYME in your PANS/PANDAS child

Jeanne Hubbuch, M.D.

2:45-3:00 p.m. Break

3:00-3:45 p.m. Advocating for your PANDAS child

Beth Maloney J.D., Author, Attorney, Medical Advocate

3:45 – 4:45 p.m Panel Q&A / Discussion

Peggy Chapman, Jeanne Hubbuch, Beth Maloney, Jamie Micco

4:45-5:00 p.m. Closing Remarks

Peggy Chapman


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If it's any help, it's far cheaper to fly to NYC or Boston from most parts of the country than directly into Providence. Boston is about an hour and a half from Providence by car or train. Amtrak goes directly from Newark to Providence and the conference is walking distance from the train station. Airfare tends to be cheapest early in the week. I've read that people should book air on a Tuesday for the best rates.

Where theres a will, there's a way?

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Those of you in the know about that area, would it be reasonable then for me to fly into Newark and then take the Amtrak? This looks like a much cheaper flight option. Please understand though that I can get lost in my own house :P . So I need a plan that is easy to understand. I appreciate suggestions. I can only do this if it is very economical (and I REEEEEEALLY want to).



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Im sure it is very doable. But the train is more expensive than you might think. You ought to look into renting a car as well. Its a very easy, straight drive to RI. The city of Providence is right off I95. These days you can even rent a GPS for $10 a day. If you didnt want to pay for parking you could drive to the airport in PVD and get the MArriott shuttle to pick you up. It sounds complicated, but its really an easy ride. I make that ride many times a year.

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