Jump to content
ACN Latitudes Forums
Sign in to follow this  

Tics During Sleep

Recommended Posts

Good morning,


I am a desperate mother experiencing major problems with a child suffering from both sleep apnea as well as bouts of 'tics/tourettes' symptoms during sleep, where he cannot recall or remember anything at all...please help!!!!!!!!!!!!! :)

Share this post

Link to post
Share on other sites


Most people with TS do not tic when they are asleep, so the tics your son is experiencing may be related to something other than TS.


Does he tic at any other time or in any other environment?

If not, then it is possible that something in his room (or that he is consuming or exposed to before bed) is triggering the tics (and perhaps the sleep issues as well)


Have you seen a sleep disorder specialist about the sleep apnoea? That may also shed some light on why it is accompanied by tics.

Share this post

Link to post
Share on other sites

Cara, please note I said MOST people with TS do not tic in their sleep. I did not say all.


The literature is pretty consistent that for those that do, tics are usually greatly diminished.

Share this post

Link to post
Share on other sites

When our daughter was diagnosed last year, her phsycatrist asked me if I had notest her ticing in her sleep, I hadn't , he said that she probebly does. I had never seen it until by accident one night when I went to check on her.....and there she was...having full body tics! I have also noticed that when she has waxing periods we find her in very odd body posture positions. I'm sorry I can't comment on the sleep apnea side of things, has your son been diagnosed with ts( my apologies if you have mentiond this before) ?


We found that a strict bed time rituall helped with sleep time. Epsam bath, followed by a chapter or two of a book, gental massage then bed, helps sometimes with sleep. Not every time but some times. Even a heated wheat bag to drap on herself has offerd comfort :)

Share this post

Link to post
Share on other sites

In the early days after the severity of my son's onset of TS, we had a bed in our room for him as that was the only way he managed to sleep without night fears etc.


I was awake a lot during those nights as I was pretty anxious and distressed about what was happening to him and would spend a lot of time just praying and watching him while he slept. It was the only time that he seemed totally at peace, and I never observed tics then.


But yes, as with everything related to TS, different things manifest for different people.


I did go back and look at a lot of references and again, as I realize things are ever changing on what we know about TS....the majority I could find suggested that people with TS tend not to tic when asleep (at least not noticeably) and that if they do, it appeared the tics were greatly diminished.

Share this post

Link to post
Share on other sites

I do not have a dx of TS with my son...not to say that it is not TS...his tics are vocal for the most part...but i have heard him tic while sleeping. As Chemar stated though, very diminished.

Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
Sign in to follow this  

  • Announcements

    • Administrator

      Forum Community Guidelines

      Our forums provide support for people dealing with neurological and related issues. Everyone joining this community should find it a safe haven where they are treated with respect, civility, and understanding.

      Your agreement as a user: You agree that you will not use this forum to post or send messages that are knowingly false, inaccurate, abusive, vulgar, obscene, profane, or sexually oriented. Text should not be defamatory, harsh, accusatory, intimidating, slanderous, an invasive of a person's privacy, or violate any law. Doing so may lead to you being banned (and your service provider may be informed). The IP address of all posts is recorded to aid in enforcing these conditions. You agree that the webmaster, administrator, and moderators of this forum have the right to remove, edit, move, or close any topic at any time should they see fit. You agree not to post any copyrighted material unless the copyright is owned by you or by this forum/website. Advertisements, solicitations for services or business, most research requests, as well as any type of research on the content of these forums by third-parties, are prohibited. Unauthorized use or reproduction of posts on these forums is not allowed. Any user who feels that a posted message is objectionable is encouraged to contact an administrator.

      Announcements, media requests, and research requests

      These need administrative approval. Please send to an administrator before posting.

      Inappropriate content

      Members are here for support and education. Check the list below for types of posts that are not allowed: Advertisements Flames or messages meant to intimidate, criticize, or harass others Threatening or obscene messages Messages discussing a private message (PM) from others Copyrighted materials that you do not own the rights to, except educational or research articles Messages containing or condoning illegal acts; also messages of suicidal intent Direct discussion of politics (please avoid) Specific or strong religious views Requests for donations for other organizations unless approved by administrator Solicitation of members for research, media projects or other projects, without prior administrative approval About links for other websites:

      You may have links in your profile as long as they do not violate our guidelines (above). Links within a post to online resources and articles are generally OK. Do not post links to other forum communities with the aim of soliciting other members to that community, thereby taking them away from this community.

      When a guideline is violated

      If you violate a guideline, you will be contacted by PM or email. We will try to resolve things amicably. We don’t like to ban members and rarely do, but this is an option.

      Updated March 19, 2010
    • Administrator


      The ACN Online Discussion Boards are intended to provide helpful information and allow sharing of ideas. Postings should not be considered as medical advice. All users should consult with their healthcare professional for questions or medical decisions.

      Users must accept full responsibility for using the information on this site and agree that ACN, Latitudes.org, advisory staff or others associated with the site are not responsible or liable for any claim, loss, or damage resulting from its use. Please remember that we do not actively monitor all posted messages and cannot be responsible for the content within. We can also not guarantee that access to the site will be error-free or virus-free.

      Reproducing any document in whole or in part is prohibited unless prior written consent is obtained. Web pages may be shared when passed on with the URL.

      Information posted on the Forum is done so voluntarily and will be accessible to the public. The material posted may be used by ACN (without the identity of the user) for publications or educational purposes. No compensation will be provided for the use of this material.

      Note: ACN is providing this service with the expectation that users will abide by the guidelines provided. We reserve the right to monitor postings and remove or refuse inappropriate and questionable material, as well as remove dated postings at our discretion, for any reason.

      Privacy Policy

      When you register with the Forum, you need only give your email address, which is available only to the Adminstrators and will not be shared on the Forum site or with others in any format. Forum users will see only the user name you choose to provide.

      Our web server collects and saves default information logged by World Wide Web server software. Our logs contain the date and time, originating IP address and domain name (the unique address assigned to your internet service provider's computer that connects to the internet), object requested, and completion status of the request. We use these logs to help improve our service by evaluating the "traffic" to our site in terms of number of unique visitors, level of demand, most popular page requests, and types of errors.

      You have the option of enabling to save your username and password data when you are accessing interactive parts of our websites, to allow your web browser to "remember" who you are and assist you by "logging on" without you having to type your username and password repeatedly. This is known as a cookie and it can be enabled or disabled in your control panel. Cookies are small files stored on your computer's hard drive that are used to track personal information.

      Except for authorized legal investigations, we will not share any information we receive with any outside parties.

      Updated March 19, 2010
  • Help us learn if blood type has a correlation with PANDAS/PANS   78 members have voted

    1. 1. If you are the biological mother of a child diagnosed with PANDAS or PANS (or you believe the child has PANDAS or PANS), please select your blood type below:

      • O +
      • O -
      • A +
      • A -
      • B +
      • B -
      • AB +
      • AB -
      • I Don't Know

    Please sign in or register to vote in this poll. View topic