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We are waiting to start PEX and I'm getting worried. The hemotologist wants a neurologist to sign off on procedure and cannot find one that believes in PANDAS. This is so frustrating. It's a smaller hospital and I guess they have had issues with insurance not wanting to cover procedures before...but all this waiting is unbearable. He is in a such a bad place and it has been going on for so long. I was really hopeful we were on our way to something better.

 

T.Anna

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