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Lab work for Trinitybella's DD


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It's hard to comment on labs without understanding her symptoms and her treatments. I've read of her issues regarding sleep and I see autism and chiari in your signature line. But autism has a wide variety of presentations and I don't know anything about how Arnold Chiair malformation could be contributing to her issues.

I know you've been looking into lyme but not sure if you have labs that indicate lyme or if you're just pursuing it to rule it out?

 

I know some parents point to the lack of high antibodies to the pneumoccocal vaccine as evidence of a weak immune response. But you need to consider which of these strains she's ever been vaccinated against and how long ago. If you test 14 titers but she's only been vaccinated against 7, you wouldn't expect the other 7 to be high. Likewise, if it was a decade ago, low titers have one meaning but if the vaccine was 6 months ago, that would have a different meaning. So context is important in understanding this test.

 

She clearly has active Coxsackies and HHV6 IgG seems to suggest this may be active as well. What anti-virals are you using and have you seen any response? Have you ever tested her nutritional health with either a panel looking at vitamin and mineral levels or a stool sample looking at gut health? Have you tested heavy metals?

 

I know you've been considering a new doctor - because of the autism and Chiari, I'd consider Ken Bock or Nancy O'Hara. It seems they would have the most experience in these issues.

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The autism and chiari are for my kiddo. I only posted the labs for trinitybella since she is on a MAC computer.

 

The sleep and lyme are for trinitybella's kiddo though :).

 

Ironically, my kiddo's labs and her kiddo's labs are very similar, just different symptoms.

Edited by Mayzoo
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I am going to bring up Virastop with kiddo's immunologist on the 25th. My kiddo has high viral antibodies as well for coxsackie, HHV-6, EBV, and rubella. I will let you know what he says about it. I have read good things about it, but heck, if you look hard enough you can read good things about almost anything.

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LLM...I don't think that's my child's signature your looking at. She doesn't have autism and chiari. She did test possitve for lyme and bartonella. Are you looking at trinitybella? Also LLM, how you said "She clearly has active Coxsackies and HHV6 IgG seems to suggest this may be active as well" above. How do you know its an active virus. What do I look at for this? She is currently taking valtrex. Too soon to tell if it's helping. Thanks for your help.

Edited by trintiybella
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