Jump to content
ACN Latitudes Forums

Recommended Posts

Ds7 is 7 weeks post ivig.

Interesting pattern...1st week he was actually very good....the following 3 weeks very bad (tics, behavior, sensory).

The last few weeks he is only exhibiting symptoms he had when he was 4-5 years old (lots of sensory and OCD, no tics or fire (our name for excess energy and movement).

 

I have read some posts that said Dr. K refers to this as peeling back the layers.

 

Has anyone else experienced this or read about it?

Link to post
Share on other sites

In Brain on Fire, a book about a young woman with NMDA encephalitis ( where rouge antibodies to a specific receptor on neuronal tissue get through the BBB and attack the brain- usually after an illness and sometimes assiciared with ovarian cancer) the doctor and author describe "getting better in reverse order if symptoms".

 

I like Dr Ks - turning back the pages annalogy better!

And- this disorder is also treated with IVIG. Many similarities to pandas.

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
×
×
  • Create New...