Doctor, Lyme, PANDAS or both?

[frikfrak]

Hi,

 

Been treating with an LLMD for 3+ years and just recently starting thinking this can be PANDAS also since my son isn't getting better.

Anyway, brought it up to my LLMD and am starting my son on Aurgmention (?) and Biaxin. Just about the only 2 he hasn't tried.

 

Can I ask what LLMD 's people are seeing. I have a list of PANDAS docs, thanks to this forum.

 

I am now seeing an excellent LLMD (past 6 months), was just wondering. Always good to have a list

 

Also, if someone PM's me, where is my inbox/mailbox...can't find it.

 

thanks

 

 

[rowingmom]

Go to the top right hand corner and click on your name (frikfrak) to open the pull down menu. Choose "Personal messenger".

 

Where are you located?

Edited May 23, 2013 by rowingmom

[frikfrak]

hi,

 

thank you...found it....I'm in NJ

[pr40]

abx are not the only thing to try. perhaps your have tried all these already, let me just mention them, improving methylation, figuring food sensitivities, other toxins like mold?

Immune system can get out of whack and misreact to many different things.

[rowingmom]

You might want to start a new post - looking for doctors in NJ.

[LNN]

I will PM you the name of our LLMD in CT. We once talked about why some great names in lyme tout success with various protocols and yet when he himself has tried those protocols with his patients, he doesn't see the same success rate. His personal theory is that certain approaches work for certain groups of patients. Those patients stay with that doctor and the doctor's "truth" is that the protocol works extremely well. But what's missing from the picture is that for those patients who don't respond, they leave that doctor and find another one until they find something that works.

 

So there may be nothing wrong with the doctors you've been working with, their approach just wasn't right for your child.