T_Mom Posted May 6, 2013 Report Share Posted May 6, 2013 ...How does one determine if/when what your kid has is caused by an underlying infection (in which case Abx will help) - or is simply a bad genetic card in the deck (TS) - in which case Abx will simply not work? Is this determination made after trying a number of drugs over an extended period, ruling out all other possibilities? Or is there an easier, more conclusive way of doing this? Thanks once again for all your suggestions! God Bless! Hi Nitshel, my heart really goes out to you as we all understand the frustration of trying and only finding that yet another unwanted outcome occurs...(like the vocal tics.) The truth is, at this point there are few sign posts showing how to determine if there is an underlying infection--my d with our first episode showed up on the MRI with a sinusitis, voila, treated with antibiotics and steroids and gone. In reading your posts the question comes to mind -- was there an obvious trigger to the first episode for your son in November? Did he get strep? Was he around kids with strep? Do you think this is a PANS reaction via lyme? With PANS many of us see our kids flare when they are around others who are ill, even without strep. Have you read the Murphy article on psych drugs and PANDAS kids? -- might be worth seeing if you have not. I am so sorry you all are going through this and hope it comes to an end soon. Have you considered the Cunningham bloodwork> Link to comment Share on other sites More sharing options...
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