Jump to content
ACN Latitudes Forums
  • pandas-cover-cropped.pngYour Child Has Changed; Should You Consider PANDAS?

    Have you seen our PANDAS eBook?  Our book is a helpful primer in a friendly question & answer format.  This eBook contains useful information to understand the symptoms of PANDAS, how it is diagnosed (including lab tests), the different types of treatments, approaches for prevention, and how to find the help and support that you need.  Your satisfaction is guaranteed. Learn more

Sign in to follow this  
ajcire

arthritis, joint issues in yourself question

Recommended Posts

I have an appt on Thursday with a new rheumatologist so I will see what his thoughts are. I'm actually prefer a diagnosis of arthritis to some of the other possible causes but I just felt unsettled with the osteoarthritis diagnosis I got years ago. I have to go regardless though because I currently have no way to manage the pain of it which has gotten bad.

Share this post


Link to post
Share on other sites

Like airial95, I also carry the HLAb27 gene. I do not have AS, instead I have another form of spondylarthropathy called reactive arthritis. The difference with my type of arthritis is that it is infection triggered... which kind of stinks given my chronic tonsillitis. The other thing I will mention is that some autoimmune types of arthritis can lead to other organ damage..another reason to monitor with a rheumotologist. Reactive arthritis can cause aortic insufficiency..and AS can cause heart damage too.

Share this post


Link to post
Share on other sites

I saw the rheumatologist today. Unfortunately today my fingers weren't really bothering me so he couldn't see how bad they get BUT he was open to talking to me about things. He agreed with me that it doesn't sound like osteoarthritis which the last dr diagnosed me with.

 

I explained to him about my ds and pandas and he did at least know what it was. He doesn't do pediatric so I imagine he wouldn't come across it. I told him I had to question if my issues could be related. Ad he said, "I'm guessing you know all about strep titers" and he put that first on my bloodwork script.

 

He had an explanation for why he wasn't testing me for mycoplasma and I know that I should have pushed him to anyway. BUT I still was happy with him because he still took the time to listen to me and talked to me like I was intelligent and not a crazy woman. Best of all he didn't think I was crazy trying to link anything together.

 

He also told me that next time I was having a visible flare up to stop in the office if he was in regardless of if I had an appointment. Said he will discuss bloodwork with me as soon as he gets the results. He said it sounds like an arthritis that started with a P..lol, he had an accent and that this type sometimes ends up rheumatoid which needs to be treated ASAP. He said the bloodwork will help him figure that out....but that if it isn't likely to turn to rheumatoid to just keep doing what I do which is essentially dealing with the pain. We shall see. Past bloodwork didn't show RA.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
Sign in to follow this  

×
×
  • Create New...