eljay1 Posted November 23, 2012 Report Share Posted November 23, 2012 It's been quite awhile since I have posted. My son is now turning 8 and has had a PANS/Lyme dx for 3 1/2 years. We have done multiple ivigs which have helped tremendously. He has been on zith with Rifampin and we just recently switched back to Bactrim. We are at the end of our resources financially, so we are unable to continue with ivigs. The Rifampin seemed to be losing its effect, so we turned back to Bactrim (which use to be effective). We are pretty sure he has been battling Bartonella, and it just won't let up. Alot of his symptoms are returning--emotional breakdowns, OCD, more tics than usual, etc. I feel so sad, because he was doing really well for the last 6 months or so. At a loss... BTW, we are seeing both a Lyme and Pandas specialist, but live out of state. Can't afford more phone consults, although we have one more scheduled with Lyme doc in 2 wks. Any thoughts??? Link to comment Share on other sites More sharing options...
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