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khen

Research papers

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Hi Everyone,

 

Just wondering if anyone has any good links for reputable, encouraging research papers on Pandas/Pans etc. I'm in Ontario, have been trying to get a diagnosis for almost 8 months now for my 5 yr old son and am seeing a new doctor next month. I'd like to be able to bring some fact based, helpful stuff along with me this time. I'd have gone to one of the US specialists if I could afford it but haven't been able to make that happen yet. This new doc is a developmental neurological pediatrician and I am really hoping she will be more open or knowledgeable of this whole thing.

 

Also, unrelated to the topic....my son is doing this new thing where he is always repeating what people say or things he hears on tv in this weird matter of fact way. Is this a common thing for anybody else? I've also had my daughter, 6 seen by a naturopath for chronic yeast issues and have found out that on top of having high yeast and parasite levels she also has high metal toxicity and chemical toxicity levels. They likened it to their Autism patients' levels. This leads me to think that maybe my daughter could be headed down this road also..or maybe already is? She had some transient tics as a small child and for the last year or so has been increasingly defiant and full of rage when asked to do the tiniest of tasks, huge temper temper tantrums. Any advice would be appreciated. I know this can run in siblings and I also have a 2 year old girl.

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Your son is engaging in echolalia, which is considered a vocal tic. My DS did this very briefly--weirdly during the entirety of a visit to the opthamologist and then it disappeared. I've been told that if a child has Pandas, the chances that a sibling has it are about 40% so you are right to have a high index of suspicion.

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Your son is engaging in echolalia, which is considered a vocal tic. My DS did this very briefly--weirdly during the entirety of a visit to the opthamologist and then it disappeared. I've been told that if a child has Pandas, the chances that a sibling has it are about 40% so you are right to have a high index of suspicion.

 

I figured as much. Thanks so much for your reply.

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Hi Khen,

 

A good place to start is the PANDAS Network website - in particular look for Dr Swedo's White Paper. You should also be able to find further articles on PANDAS on the NIMH website (Nat Inst for Mental Health.) If you haven't already - go through the useful threads right at the top of the PANDAS forum. Also, are there any DAN!/Biomed drs near you? They may have more of a clue. Good luck!

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