socalmom Posted September 20, 2012 Report Share Posted September 20, 2012 I was speaking to a mother of a PANS/LYME child like my son and she seems to think PANS is LYME. I don't know what to make of this. when these kids get into remission does the PANS go away? I don't know because i am not there, but spoke to a mom who said her child hasn't had a PANS flare for 4 yrs since doing lyme treatment! She also said that lyme is an epidemic and many parents are accepting the 1 band is negative and even 2 or 3 and being told their child does not have lyme, only causing more confusion. I found lyme quite quickly after PANS so i haven't really had a chance to become as informed as i would like. I am registered at the conference at UCI so maybe this will help. Thoughts anyone? Link to comment Share on other sites More sharing options...
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