LNN Posted July 11, 2012 Report Share Posted July 11, 2012 DD has been doing really well for a few months, responding to methylfolate and other supps. But mood issues and GERD started creeping back a month ago and got pretty bad starting last week. We saw our LLMD yesterday for a follow-up and he immediately suspected yeast/fungal (she spikes in symptoms every summer, prompting an endoscope 2 yrs ago that was normal). He's seen a number of patients lately with fungal/mold issues. There's high mold count in the air plus last week everyone cranked up the AC (a good way to blow mold spores in the AC thru the whole house) and holed up indoors. Long story short, he recommended a Byron White tincture for immune support to help with the mold toxins and Enhansa (which is pure curcumin). I've seen Enhansa mentioned here before - can anyone share their experiences with it? Is it worth using? Link to comment Share on other sites More sharing options...
hugs2day Posted July 11, 2012 Report Share Posted July 11, 2012 Enhansa helps with inflammation in the body and yeast as well. Dr. can prescribe it and you can fill it through your insurance at Lee Silsby Pharmacy. You can also buy it cash. Enhansa turns everything bright orange or yellow. I have to hide it in food for my 7 year old turns apple sauce bright orange or pasta sauce , but if your dd is good at taking meds she will just swallow mixed with water. Basically will drink orange water. I have not noticed any dramatic results in using it, but I have read numerous publications on the benefits of tumeric and curcumin so I continue use. It cannot hurt. My son is also suffering gerd and has dark circles under his eyes for about 2 weeks now. I was thinking food allergies but now you have me thinking mold. I have been giving pepcid not much help so far. Good luck. I think whether you use Enhansa or cook with tumeric and curcumin it all helps reduce inflammation naturally in the body. Link to comment Share on other sites More sharing options...
Dedee Posted July 11, 2012 Report Share Posted July 11, 2012 I am using it with my daughter and recently started to use it for the rest of the family also. Our Integrative Medicine Practitioner recommended it. I think it did help my dd, but I don't have her to the amount yet that was recommended. They recommend you go very slowly because it also works to detox, and you know how that is when you go too fast. When I first started my dd on it daily she started to get worse (also had diarrhea) so I backed down to every other day for one week and then went to daily. Only this week have I started to add in the second daily dose and I'm not doing it every day. Our practitioner wants her to eventually be on it 3 times a day, but said to go slow. It is supposed to work wonders for autism and I do think I have seen positive changes. I paid out of pocket for the first bottle but then got the office to call in a script and now it only cost me $10 per month. I think it is definately worth a try. Let me know how it goes. Dedee Link to comment Share on other sites More sharing options...
LNN Posted July 11, 2012 Author Report Share Posted July 11, 2012 Hugs - FWIW - we too have been dosing pepcid. It does help. But I'd rather get to the root of things. We've also been doing zyrtec for a dry cough but it doesn't seem to be helping much (whereas it helps a lot when it's really hay fever in the spring). Our LLMD felt it could be either mold (from AC or just the seasonal kind in the environment) or gut yeast or both. So we started the Byron White A-FNG today and will do that for a few weeks. Then consider enhansa. He doesn't want us to add more than one thing at a time or it gets murky. But I wanted to know if this was a keeper or something to pass on. Thanks for the input! Link to comment Share on other sites More sharing options...
SSS Posted July 11, 2012 Report Share Posted July 11, 2012 I have an Enhansa story. By the way, have you read the fact sheet on it from Lee Silsby pharmacy/Our Kids ASD website? Pretty informative. I did a protocol with dd with it 2 years ago- now, she had a phenol/stalactite issue at the time, so I thought it made her hyper, but I pushed through. Got to the highest dose, combined with vitamin C about 2-3 grams a day, and we got a huge viral die off- chicken pox sores started on the top of her back, and worked their way down her entire body for 1 month (while continuing the protocol.) I took her to a Dr. to view this rash, Dr. says: 'Huh! Looks like chicken pox!' And gave me no advice. She had been fully vaxed for chicken pox. After that rash left, 1 month long, I tapered her down off it. So, IMO, it can hit viral. Now, for myself, I have been using Longvida brand curcumin - 1,000 mg a day, every day, for about 12 months now. I went off it 2 nights ago because I am having a minor 'procedure' on Friday, and the next day I got a wicked migraine (no other changes) I wonder if that happened because the inflammation was being controlled by Longvida? My little ..02 cents. Build up on the Enhansa- I would buy the bottle of 150 mg. caps so you can titrate up. Link to comment Share on other sites More sharing options...
tpotter Posted July 12, 2012 Report Share Posted July 12, 2012 Hugs - FWIW - we too have been dosing pepcid. It does help. But I'd rather get to the root of things. We've also been doing zyrtec for a dry cough but it doesn't seem to be helping much (whereas it helps a lot when it's really hay fever in the spring). Our LLMD felt it could be either mold (from AC or just the seasonal kind in the environment) or gut yeast or both. So we started the Byron White A-FNG today and will do that for a few weeks. Then consider enhansa. He doesn't want us to add more than one thing at a time or it gets murky. But I wanted to know if this was a keeper or something to pass on. Thanks for the input! Could the dry cough be mycoP (that was my main symptom for 3 years.) Easy to test for (and quite accurate.) Link to comment Share on other sites More sharing options...
LNN Posted July 12, 2012 Author Report Share Posted July 12, 2012 We've touched on myco but LLMD hasn't pursued it. Prior to mid-June, DD was in a great place. Given her history of yeast/gut dysbiosis, GERD (which is active again after a year of calm), her high allergies to pollens and molds - and his seeing several other patients lately with similar symptoms who've responded to fungal treatments - the fungal is where he focused. We did do a blood draw and will check C3d, CBC, copper and other things. Will be doing a Great Plains OAT test once the test kit comes in. But for now, myco is a back burner thing while we see how the fungal treatment works. But I will keep it in mind if things don't resolve... Link to comment Share on other sites More sharing options...
philamom Posted July 12, 2012 Report Share Posted July 12, 2012 We've touched on myco but LLMD hasn't pursued it. Prior to mid-June, DD was in a great place. Given her history of yeast/gut dysbiosis, GERD (which is active again after a year of calm), her high allergies to pollens and molds - and his seeing several other patients lately with similar symptoms who've responded to fungal treatments - the fungal is where he focused. We did do a blood draw and will check C3d, CBC, copper and other things. Will be doing a Great Plains OAT test once the test kit comes in. But for now, myco is a back burner thing while we see how the fungal treatment works. But I will keep it in mind if things don't resolve... Hi LLM. Sorry to hear some symptoms have returned. Did you take her off abx? If I remember correctly from one of your post, you were considering it? Hope you see improvement with the fungal treatment. Link to comment Share on other sites More sharing options...
LNN Posted July 12, 2012 Author Report Share Posted July 12, 2012 She remains on 125mg zith daily as prophylactic. It's DS who's taking the abx holiday to see where we are in lyme treatment. He's 10 days w/o any abx and is ok so far. But too soon to declare victory. At least he's been in a good place while my 88yo dad is visiting. My dad has little patience for boys in general. Would be horrible to have DS in a flair. So counting my blessings and holding my breath. DD was better yesterday - not without issues but did a much better job catching herself and controlling her moods before she tipped over the edge. It's always something, eh? Link to comment Share on other sites More sharing options...
tpotter Posted July 13, 2012 Report Share Posted July 13, 2012 We've touched on myco but LLMD hasn't pursued it. Prior to mid-June, DD was in a great place. Given her history of yeast/gut dysbiosis, GERD (which is active again after a year of calm), her high allergies to pollens and molds - and his seeing several other patients lately with similar symptoms who've responded to fungal treatments - the fungal is where he focused. We did do a blood draw and will check C3d, CBC, copper and other things. Will be doing a Great Plains OAT test once the test kit comes in. But for now, myco is a back burner thing while we see how the fungal treatment works. But I will keep it in mind if things don't resolve... Hi LLM. Sorry to hear some symptoms have returned. Did you take her off abx? If I remember correctly from one of your post, you were considering it? Hope you see improvement with the fungal treatment. I don't want to push, but it could be yeast and mycoP. MycoP only takes a very simple blood test, and then at least you could rule it out. The reason I'm bringing it up again, is that I personally suffered from it for 3 years, and my only major symptoms were a dry cough, and uncontrolled asthma. I could have saved myself 3 years of ****, plus the fact that I am now dealing with possible permanent lung damage (I'm really having trouble clearing everything), and I exposed my entire family to it (they were all extremely high in IgG,and their IgG still goes up when my IgM rises.) Personally, I would just ask the LLMD (or even your pediatrician) to test for it. If it's negative, then you know the cough has nothing to do with that. Link to comment Share on other sites More sharing options...
Recommended Posts
Create an account or sign in to comment
You need to be a member in order to leave a comment
Create an account
Sign up for a new account in our community. It's easy!
Register a new accountSign in
Already have an account? Sign in here.
Sign In Now