Kimflow Posted July 10, 2012 Report Share Posted July 10, 2012 For those of you who have had IVIG, what was the dose/kg administered. Link to comment Share on other sites More sharing options...
peglem Posted July 10, 2012 Report Share Posted July 10, 2012 The first 2 for my daughter were low dose- <0.5g/kg. She now gets 1.5g/kg every 3 weeks. But, she has an immune deficiency. Link to comment Share on other sites More sharing options...
Dedee Posted July 10, 2012 Report Share Posted July 10, 2012 We did 2g/kg over a two day period. Then repeated again in 2 months. Link to comment Share on other sites More sharing options...
cobbiemommy Posted July 10, 2012 Report Share Posted July 10, 2012 We also did 2 gm/kg over two days. My son also has immune deficiency. This will be repeated every eight weeks. Link to comment Share on other sites More sharing options...
Kiera Posted July 10, 2012 Report Share Posted July 10, 2012 Usual high dose for pandas is 1.5g/kg. The NIMH clinical trial is using 2g/kg. Maybe some Drs are starting to use the 2g now also since the trial is using that?? Link to comment Share on other sites More sharing options...
PowPow Posted July 10, 2012 Report Share Posted July 10, 2012 2g/kg Link to comment Share on other sites More sharing options...
Kimflow Posted July 10, 2012 Author Report Share Posted July 10, 2012 well, this makes me nervous....as ours is 1 gm per kilogram and we have pandas/syndehams chorea. Link to comment Share on other sites More sharing options...
Tamistwins Posted July 10, 2012 Report Share Posted July 10, 2012 We started out with 1.5 g per kilo and then upped to 2.0 g per kilo with Dr. B, however more recently we have been doing 1 g per kilo every 3 weeks with another doctor and are getting it at home. Dr. B says that may work and build up immune system and keep infections at bay. 1 g isn't really considered low dose. Link to comment Share on other sites More sharing options...
PowPow Posted July 10, 2012 Report Share Posted July 10, 2012 well, this makes me nervous....as ours is 1 gm per kilogram and we have pandas/syndehams chorea. well it was 2 g/kg over 2 days-- so it was 1 g/kg a day- 55 kg = 55 g Gammunex on Tuesday and 55 g Gammunes on Tuesday- one daughter with tics and anorexia/OCD the other with chorea and ocd Link to comment Share on other sites More sharing options...
nicklemama Posted July 11, 2012 Report Share Posted July 11, 2012 1.5mg/kg over two days. He's had one treatment a yr ago. Link to comment Share on other sites More sharing options...
Jtsmama Posted July 13, 2012 Report Share Posted July 13, 2012 Just did 2gm/kg of Privigen this week for the 1st time. My son is also Immuno, on SCIG weekly Link to comment Share on other sites More sharing options...
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