lmkmip67 Posted July 5, 2012 Report Share Posted July 5, 2012 I have heard mention of Dr. Michael Jenike and of some work being done at Mass General with PANDAS. We are currently traveling to CT, but treating the OCD locally. We are not seeing much improvement from the treatments based in CT, so it has prompted me to look more into treating the OCD as best we can at the moment. That led me to the page on Mass Gen web site and they said they are treating PANDAS (I still have no doubt infection is a component for us). So I was curious if anyone has any information on what is going on at Mass Gen for PANDAS? Any one doctor actually treating it? If I missed news on this, I was most likely trying it ignore the PANDAS monster for a few months and throw myself into work since Ian is stable at about 50%, just not near 100% like I would like to see him. Thanks for any info! Lisa Link to comment Share on other sites More sharing options...
colleendonny Posted July 5, 2012 Report Share Posted July 5, 2012 I have talked to him via e-mail. I have his email address at home. I will send it to you. He writer back usually within a few hours. Link to comment Share on other sites More sharing options...
lmkmip67 Posted July 5, 2012 Author Report Share Posted July 5, 2012 Thanks, Colleen! that would be great. Link to comment Share on other sites More sharing options...
minimaxwell Posted July 5, 2012 Report Share Posted July 5, 2012 Feel free to call me 508-667-0574. we are currently working w/ dr. Jenike and Dr. Geller to form a PANDAS team at MGH.-tiffani Link to comment Share on other sites More sharing options...
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