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Navigating the Storm


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A forum mom shared this with me and I thought it was worth passing along...

Navigating the Storm

 

Some excerpts:

 

"Be confident when dealing with medical professionals....They are expert consultants, but you (When I say “you” I mean one or both parents or the person who has the power to make decisions for the child.) are the ultimate authority on everything having to do with your child...The best doctor/parent relationships are based on a mutual commitment to providing the best possible care for the child. You have to work together. Make sure your child’s doctors know that you expect nothing less.

 

Be prepared for the jerks.You’re going to meet some...I have a magic phrase. I have it ready for all the people who use words like brat, and control your kid, and what the ###### is wrong with him and this isn’t a playground, you know!

 

My magic phrase is this: You have no idea what you’re talking about.

 

No muss. No fuss. I don’t get all worked up, Carter doesn’t see me getting all worked up, and since people expect me to push back, their surprise knocks them off course.

 

Get a magic phrase. You can use mine if you want, or make your own, but have it ready!

 

People are going to tell you that you’re strong. They’ll say you’re special, extraordinary, a hero. They’ll even call you an angel.

 

It’s OK that you’re not. Raising a child with emotional and behavioral challenges is wickedly difficult. You don’t have to do it with grace, finesse, or style. (There are no points for any of that, in case you hadn’t heard.) You just have to show up and do it.

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