concerned mom Posted May 27, 2012 Report Share Posted May 27, 2012 My son has Pandas and has been on abx for over 18 mos straight. He is having a bad sore throat and it has white spots on it. I am assuming it is strep and have called the doctor and am waiting for a call back. How is this possible? Where do we go from here? Link to comment Share on other sites More sharing options...
EAMom Posted May 27, 2012 Report Share Posted May 27, 2012 My son has Pandas and has been on abx for over 18 mos straight. He is having a bad sore throat and it has white spots on it. I am assuming it is strep and have called the doctor and am waiting for a call back. How is this possible? Where do we go from here? Culture first to make sure it is strep. How much does he weigh, and what dose and type of antibiotic is he on? There are Azith. resistant strains of strep on the East Coast. IMHO, Amoxicillin/Augmentin 1x daily isn't effective for PANDAS kids. Also, IMHO, the dose (of whatever ab you are on) is important. Link to comment Share on other sites More sharing options...
concerned mom Posted May 27, 2012 Author Report Share Posted May 27, 2012 He weighs about 130 lbs and is on 500 MG Cefaclor 2x a day. We saw an increase in his tics in the past 2 mos and we're waiting for an appt in early July with an ENT to consider a tonsillectomy. I'm not seeing an increase right now in Pandas symptoms other then a slightly increased frequency in tics which has been going on for the past two months. I'm scared. Link to comment Share on other sites More sharing options...
beeskneesmommy Posted May 27, 2012 Report Share Posted May 27, 2012 Get to a PANDAS doc ASAP. Peds rarely have the specialized education to comprehend much outside of the box, in my opinion. Do NOT wait. It is at least a 2 month wait list to get in. You will likley have to travel to get there. It is worth it. I do not see that you stated your location. Big gun specialists on the east Coats and the midwest that i am familiar with: Dr. Bouboulis, CT; Dr. Trifiletti, NJ; Dr. Latimer, Wa, DC; Dr. Murphy, FL; Dr. Kovocevic, IL; These are the docs that I would consider close enough to travel to for help, and I live in NC. We see Dr. Bouboulis in CT. Link to comment Share on other sites More sharing options...
cobbiemommy Posted May 27, 2012 Report Share Posted May 27, 2012 My son has Pandas and has been on abx for over 18 mos straight. He is having a bad sore throat and it has white spots on it. I am assuming it is strep and have called the doctor and am waiting for a call back. How is this possible? Where do we go from here? This also happened to my son who is diagnosed and just recently to my daughter who hasn't been diagnosed (but she was taking treatment level abx for Bartonella). It can happen if your son has no antibodies for strep. My son had his Streptococcal Antibody titers run and he has no antibodies for strep. Is your child seeing an immunologist? I would highly recommend getting to one ASAP for further testing and treatment dose meds for throat. Link to comment Share on other sites More sharing options...
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