eljay1 Posted May 10, 2012 Report Share Posted May 10, 2012 We have been fighting PANDAS for a couple of years now and have been receiving ivig for this past school year. I am very careful about what we give my son--he is sensitive to alot of things. I have recently heard that thimerasol is used in lots of ivig preparations. (Makes sense, but I never thought about it!!) Has anyone had this experience, and are you requesting preservative free ivig?? Thanks! Link to comment Share on other sites More sharing options...
SSS Posted May 10, 2012 Report Share Posted May 10, 2012 **It is no longer in the IVIG solutions!** It used to be, years ago. Our last year treating PANS/DAN! Doctor, who is a little bit famous, told me a story of a famous couple who had a son, who was diagnosed with Kawasaki disease as a very young child- the child started to receive ongoing IVIG's, when they still had thimerosal (mercury preservative) in the solutions, and the child became full blown autistic, seizures, so, so sad and terrible! They took out all the thimerosal out of the IVIG solutions many years ago. But make yourself feel better and ask if you (your child) are going in for IVIG. Link to comment Share on other sites More sharing options...
LNN Posted May 10, 2012 Report Share Posted May 10, 2012 Here's the FDA list of blood products, vaccines and OTC health products containing mercury: Plasma products: http://www.fda.gov/BiologicsBloodVaccines/SafetyAvailability/BloodSafety/ucm095529.htm Vaccines: http://www.fda.gov/BiologicsBloodVaccines/SafetyAvailability/VaccineSafety/UCM096228 OTC (nasal sprays and eye drops - yes, lets put this stuff directly into our brains! http://www.fda.gov/RegulatoryInformation/Legislation/FederalFoodDrugandCosmeticActFDCAct/SignificantAmendmentstotheFDCAct/FDAMA/ucm100218.htm Of course, this doesn't address what other things are now being used as preservatives. Link to comment Share on other sites More sharing options...
tpotter Posted May 10, 2012 Report Share Posted May 10, 2012 Here's the FDA list of blood products, vaccines and OTC health products containing mercury: Plasma products: http://www.fda.gov/BiologicsBloodVaccines/SafetyAvailability/BloodSafety/ucm095529.htm Vaccines: http://www.fda.gov/BiologicsBloodVaccines/SafetyAvailability/VaccineSafety/UCM096228 OTC (nasal sprays and eye drops - yes, lets put this stuff directly into our brains! http://www.fda.gov/RegulatoryInformation/Legislation/FederalFoodDrugandCosmeticActFDCAct/SignificantAmendmentstotheFDCAct/FDAMA/ucm100218.htm Of course, this doesn't address what other things are now being used as preservatives. OMG...we use some of the OTC stuff. I am sooooo ticked off by this. DS19 just said: "That's where I'm getting the mercury from!" Link to comment Share on other sites More sharing options...
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