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Indiana....PANDAS


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My daughter has recently been diagnosed with PANDAS. We live in Indiana and I am curious as to how many forum members live in Indiana? Perhaps we could exchange contact information, as a form of additional support! I am new to this devastating disease and could use support, advice :wacko:

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My daughter has recently been diagnosed with PANDAS. We live in Indiana and I am curious as to how many forum members live in Indiana? Perhaps we could exchange contact information, as a form of additional support! I am new to this devastating disease and could use support, advice :wacko:

 

I live the Southern Indiana, about 20 minutes from Louisville,KY. My dd7 had 1 exacerbation in September of 2010. We caught it quickly and is doing great almost 2 years later! PM me if you get a chance.

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My daughter has recently been diagnosed with PANDAS. We live in Indiana and I am curious as to how many forum members live in Indiana? Perhaps we could exchange contact information, as a form of additional support! I am new to this devastating disease and could use support, advice :wacko:

 

I live the Southern Indiana, about 20 minutes from Louisville,KY. My dd7 had 1 exacerbation in September of 2010. We caught it quickly and is doing great almost 2 years later! PM me if you get a chance.

 

We live in Southern Indiana, as well! Our 5 year old daughter was just recently diagnosed by Dr. Trifiletti. We have a consult with him tomorrow to discuss treatment plans. I am hoping that we caught it early enough, as her onset was two months ago. I will send you a message :)

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  • 1 year later...

I'm in southern Indiana, also. 21 year old daughter with terrible OCD (intrusive thoughts) and anorexia with exercise compulsion (PANDAS). Anxiety, depression. We didn't realize it was PANDAS until about a year or so ago. Began in 4th grade with overnight bladder issues. Lots of strep back then. Working with Dr. K in Chicago now.

I'm short on time right now but feel free to PM me.

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