colleendonny Posted April 28, 2012 Report Share Posted April 28, 2012 Not for my PANDAS DD. She is currently well. But my little one is almost 10 months. It seems as if she had a few seizures tonight. I'm scared to death Link to comment Share on other sites More sharing options...
junkyardjean Posted April 28, 2012 Report Share Posted April 28, 2012 My thoughts are with you tonight! Link to comment Share on other sites More sharing options...
Tamistwins Posted April 28, 2012 Report Share Posted April 28, 2012 Sending good thoughts and praying for speedy recovery! Link to comment Share on other sites More sharing options...
philamom Posted April 29, 2012 Report Share Posted April 29, 2012 Also sending prayers. Link to comment Share on other sites More sharing options...
fightingmom Posted April 29, 2012 Report Share Posted April 29, 2012 Hang in there. Thinking of you. Link to comment Share on other sites More sharing options...
Orion Posted April 29, 2012 Report Share Posted April 29, 2012 Oh No! Hugs to you and your family! Link to comment Share on other sites More sharing options...
colleenrn Posted April 29, 2012 Report Share Posted April 29, 2012 Please let us know how she is doing when you get a chance. You will be in my prayers. Colleen Link to comment Share on other sites More sharing options...
colleendonny Posted April 29, 2012 Author Report Share Posted April 29, 2012 Thanks everyone we spent the night amd she is now on an EEG moniter. We will spend the night again. She hasn't had anymore episodes. I wish it would happen at least once just to get it on the EEG. Anyone know is seizures are related to PANDAS? I know it can be a sign of Lyme. I just got tested myself at Dr. B's office last week. We saw someone from neurology in the ER last night. He may have been a resident. Taking family history, I mentioned kayleigh has PANDAS. He said, "You know, a lot of neurologists don't believe in PANDAS." I said, "Yes I know, but she is getting treatment amd is getting better, so I believe in it." And I overheard a nurse talking in the ER to someone. I think someone brought their daughter in and I caught that she was having bad words/ thoughts. They were saying behavioral. I wanted to jump out of my room and shriek PANDAS!! We are at non- PANDAS believing Children's Hospital Boston. They are taking great care of Lucy though! Link to comment Share on other sites More sharing options...
bulldog24 Posted April 29, 2012 Report Share Posted April 29, 2012 thinking of you! Link to comment Share on other sites More sharing options...
bigmighty Posted April 29, 2012 Report Share Posted April 29, 2012 Thinking good healing thoughts for Lucy and hoping that the docs are able to figure things out sooner rather than later. Link to comment Share on other sites More sharing options...
Recommended Posts
Create an account or sign in to comment
You need to be a member in order to leave a comment
Create an account
Sign up for a new account in our community. It's easy!
Register a new accountSign in
Already have an account? Sign in here.
Sign In Now