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any pandas parents want to meet up next week in SE MA


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LOL.....I crashed a conference a few weeks ago while attending another conference at the same hotel. It was the Anxiety Disorders Association of America (ADAA) and they were talking about anxiety in children so I just went in like I belonged there. :lol: Didn't go so well for me though cause it nearly made me sick when every child they described sounded like a PANS case to me. I got brave enough to ask the lecturer if the kids in the studies she refereed to had been screened for PANS prior to entering the study. She was a bit indignant, and said "of course they were screened for abrupt onset." When I asked if they were screened medically, she skipped the question and went on to other questions. <_< So basically, I came out of there depressed and feeling like there are hundreds & hundreds of kids out there who need help but are only getting psych drugs and a bipolar diagnosis.

 

I would love to crash the Boston conference with you but unfortunately it doesn't look like I'm going to be in that area. Shucks... I say go for it!

 

Also, I wish I lived close enough to have dinner with you guys. I really enjoy spending time with other PANS parents. Just don't get the opportunity very often. Have fun!

 

Dedee

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LOL.....I crashed a conference a few weeks ago while attending another conference at the same hotel. It was the Anxiety Disorders Association of America (ADAA) and they were talking about anxiety in children so I just went in like I belonged there. :lol: Didn't go so well for me though cause it nearly made me sick when every child they described sounded like a PANS case to me. I got brave enough to ask the lecturer if the kids in the studies she refereed to had been screened for PANS prior to entering the study. She was a bit indignant, and said "of course they were screened for abrupt onset." When I asked if they were screened medically, she skipped the question and went on to other questions. <_< So basically, I came out of there depressed and feeling like there are hundreds & hundreds of kids out there who need help but are only getting psych drugs and a bipolar diagnosis.

 

I would love to crash the Boston conference with you but unfortunately it doesn't look like I'm going to be in that area. Shucks... I say go for it!

 

Also, I wish I lived close enough to have dinner with you guys. I really enjoy spending time with other PANS parents. Just don't get the opportunity very often. Have fun!

 

Dedee

 

 

I am in for drinks or dinner or both.

 

I would def. crash that conf. When and where is it? I will go too if I can.

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Open to anyone who wants to go. Lets meet up for dinner or drinks next week! Daytime is hard for me so evening works best.

 

We can pick a central location.

 

Whos game?

 

Do you want to or I can send an email out to the support group people. I don't think they all are on latitudes.

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Open to anyone who wants to go. Lets meet up for dinner or drinks next week! Daytime is hard for me so evening works best.

 

We can pick a central location.

 

Whos game?

 

I'm in Rhode Island but would be up for dinner in SE Mass. If you happen to be doing it on Tuesday or Wednesday I could. There are no support groups around me and no other PANDAS/PANS parents so I'd love to have others to meet up with.

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Want to go together? I'm game...

 

I am thinking about crashing the Boston Pediatric conference on Tuesday May 1. Dr.'s Cunningham,Leckman and Swedo are presenting. Think I can sneak in?

 

I so badly want to go to this if the public is allowed...but my final in psychology is on Tuesday! So jealous.

Please take notes if you go!!

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