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My dd8 is scheduled to have her tonsils out in two weeks. We are now second guessing our timing of it. If we do it in two weeks, she will still have 4 weeks left of school where she will be at the risk of being exposed to strep again and other viruses. Has anyone had their child's tonsils out during the school year and sent them back a week later with good results? Thank you in advance for your thoughts on this.

 

I just thought of one more question. Did your kids have intravenous abx. during the surgery? If not, how was the outcome? thanks!

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My son just had his T & A three weeks ago. He went back to school a week later. Luckily my surgeon is knowledgeable abour pandas and had my son on iv antibiotics during surgery and augmentin after surgery. My son is now on zithromax three times a week for strep prevention. By the way 2 days after surgery his tics were gone, the surgeon thinks the strep was hiding in his adenoids. In my opinion if your child is having symptoms of pandas/ pans and still have their tonsils and adenoids I would seriously consider this surgery.

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My daughter had them out when she was 9 and went to school on the third week following. She had IV antibiotics. It was like a miraculous recovery. She no longer needed any meds (previously she was on zoloft) and had zero symptoms. She was completely normal. 100% .... for 9 months. Now we are back to square one. Lots of meds (zoloft, abilify, abx, etc) and very symptomatic. Having first IVIG done in May. Hope it is the magic bullet. Also, having CBT done in FL with Storch's group. We'll see.

 

But, in answer to your question. It was great to have the t & a removed but only for 9 months (but the were a WONDERFUL 9 months).

Hope this helps.

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Ptcgirl, I'm really sorry to hear that. How devastating to have your dd back only to fall back like that. We had adenoids removed and tubes in ears but my sons doc kept his tonsils. This was way back before we ever knew I pandas, but he was displaying behaviors at that time. He did well for about a ea and then was gettin sick all the time again.

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Ptcgirl, I'm really sorry to hear that. How devastating to have your dd back only to fall back like that. We had adenoids removed and tubes in ears but my sons doc kept his tonsils. This was way back before we ever knew I pandas, but he was displaying behaviors at that time. He did well for about a ea and then was gettin sick all the time again.

It is a blessing and a curse. Those nine months were great but I lived in fear that it would come back which it did eventually. I guess it does solidify Pans in my mind though. My pediatrician, after it came back,said it most not be pAndas since she didn't have strep. We've since moved on to a different doctor. I feel like I should send copies of all the latest reaearch that shows it isn't just from strep. Doubt she'd listen though. Some people can't stand to be proved wrong.

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Do it anyway! I need more time to prove I am on the right path and more labs etc to solidify my position, but I have a list of docs that shut me down over the years and they are all getting a letter from me with as much proof of my sons condition along with studes, etc.

Even if I can keep one family from gettin is missed the way I was over the years from each of these docs it will be worth it!

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my dd10 had t&A in nov Out 2 weeks. back to school. Got strep 6 weeks later.

 

 

Did her pandas symptoms go away for those 8 weeks before she got strep and did they come back when she got the strep? I am really bummed we are not meeting again until the 15th. I was looking forward to the meeting I thought was going to be on the 23rd.

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my son had tonsils and adnoids out in the summer and had a good recovery. Got strep at start of school year in late September and it was one of the worst episodes he ever had. He was oral amoxicillin before and after surgery.

 

Good idea to get iv abx and stay on oral abx after. Good luck.

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Well my daughter does not have severe pans just mild. The surgeon i didnt like. Wouldnt culture the t&a

And did not give abx.

 

if i had to do over i woud have gone elsewhere and demanded these things.

Recovery was a bit rougher than I thought it would be. She needed every day. One day was ok next severe pain.

 

Get plenty of pain meds.

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I was thinking though we dont need a schedued meeting. We pandas folks could get together whenever. We could just go out to dinner or something

 

I was thinking the same thing. I was going to mention that in my last post. We could meet somewhere for a drink at night or a coffee during the day just to talk. Let's do it next week.

Also, could you let me know who you had for and ENT. I am had one but changed to another bec. he had earlier appointments but I am questioning whether to go to him or not.

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    1. 1. If you are the biological mother of a child diagnosed with PANDAS or PANS (or you believe the child has PANDAS or PANS), please select your blood type below:


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