adelaide77 Posted March 26, 2012 Report Share Posted March 26, 2012 I have never used a discussion board before, but this seems to be the best place for information on tourettes that I can find. My son is 5, he has not had an official diagnosis as of yet (he has been seen three times for observation and there were no tics present during the observation - murpy's law I guess!) but I am almost 100% certain this is what he has. They have never been very noticeable to anyone but our immediate family until recently. He does some very loud breathing and sniffing and runs his hands across his face or places his had over his nose and twists his head to the side at the same time, sometimes so vigorously he rubs his face raw and can't speak for several minutes. I'll ask him a very simple question and he will tic for what seems like hours, only to blurt out 'yes!' at the end of the event. The last few days he has been doing it even while eating or drinking and spilling food and other things all over himself. I worry a lot about how severe the tics will get over time - do they slowly progress to more violent outbursts as they get older? He has just started school full time and I think this is what has triggered the more intense tics (they were just vocal noises prior to this). His teachers are very open to discussing it, but also have no information or prior experience with Tourette's. He goes to a country school, there are 14 kids ages 5-11 in one classroom so as you can imagine it is quite hectic at the best of times. there is also one 11 year old with autism in the class, and another with sever adhd - my son seems quite normal and quiet in comparison plus there is not a lot of time for observation. I live rurally in New Zealand and I'm having trouble finding support and information over here. There is a wealth of information on the internet but it is all very overwhelming, I can barely figure out where to start. Definitely with diet, I would love any suggestions if anyone has the time to help me with this. I also don't know anything about PANDAS/IVIG etc - is it really that easy that you can get a positive strep test and go on some antibiotics and see a complete miracle? My son is a very bright social little creature, and seems very happy. He does not seem to have any other noticeable problems as of yet. Any help or even just someone in the same boat to talk to would be greatly appreciated!! Kristen Link to comment Share on other sites More sharing options...
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