shannon aka mommy Posted March 21, 2012 Report Share Posted March 21, 2012 Hello everyone -- I'm sorry, but this is going to be a long post... I have a 14 year old ds who has had a dramatic increase in OCD symptoms and the onset of tics in the last two weeks. I didn't realize he had OCD sypmtoms before all of this happened, but looking back now I can see that he has had OCD for at least the last year -- spending forever brushing his teeth -- constant questions... Anyway, we were orginally looking at Tourettes, but then we ran across PANDAS and he seemed to fit description. In early January ds had horrible headache and fever we think now -- strep. March 4th we were in the ER asking why our son was "jerking". Our oldest son has epilepsy so we were thinking this was the same. When I read about Tourettes it seemed far worse than epilepsy. I cried because there was no "magic pill'. Our ped doc was helpful, but only slightly familiar with PANDAS. We had the titter? and strep tests which came back negative. She did already prescribe amoxicilin for him for 30 days, 500mg a day. We found Dr T at USF in Tampa and called for an appointment -- we live in north Florida. My husband spoke with someone there who agreed that my son fits the symptoms and because we seem to be catching this early said they would try to get him in soon. Just got a call today that our appointment would be May 23rd! So, now I'm wondering if we should be looking around for someplace else to take him. How important is it that we get him in to see someone soon? My husband is the tech guy and he is reading up on this stuff like mad. My husband thinks we need to use a different antibiotic because he (my husband) is allergic to it after repeated strep treatment as a kid. He is going to read all the stuff I have found from Buster tonight and make a new appt with our local ped. She was real reluctant to prescribe anything other than amoxicilan so we aren't sure how hard we should push for this. My husband and two older boys are very allergic/intolerant to foods so I have basically put the kid on an elimination diet. He also takes daily Epsom Salt baths (very helpful)and I have added L-tryptophan to his suppliments. I read about all this in a Tourettes book and site so I'm not sure if it is good to do if we suspect PANDAS or not. We are getting by at this point. He is VERY sensitive to noise -- driving me crazy. Bought expensive new headphone due in the mail tomorrow -- yeah! He is homeschooled so I have basically cut out all subjects except music and computer editing -- which he loves:) This forum has been so helpful to me. Knowing other people are going or have gone through this is very comforting. Any advise is greatly appreciated. Shannon Link to comment Share on other sites More sharing options...
Create an account or sign in to comment
You need to be a member in order to leave a comment
Create an account
Sign up for a new account in our community. It's easy!Register a new account
Already have an account? Sign in here.Sign In Now