Article on MSN Site

[hawks]

Here's another article that was on MSN's website.

 

http://todayhealth.today.msnbc.msn.com/_news/2012/02/24/10490105-sudden-ocd-in-kids-culprit-may-be-strep-throat-other-infections?chromedomain=vitals

[thereishope]

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Edited September 30, 2019 by Vickie

[MMWG]

This is the first I have heard about the "if you it gets triggered 3 times, it become chronic"...I totally believe it, but i had not heard anyone be that specific before.

[Fixit]

This is the first I have heard about the "if you it gets triggered 3 times, it become chronic"...I totally believe it, but i had not heard anyone be that specific before.

 

i like this report alot better than the paper

 

yes and i do agree that at some point it does become chronic and i like the idea that she gives a number but it could be higher maybe something like 3-8 times.

I want all reading to know that my ds12 had complete remission 15 times with only a standard 10day course.

Now with more info i would have kept him on the abx 2 weeks the first time or 2. After that, do at least a month. Correction ...if it is a neurological reaction i would make the first course at least one month.

I just wonder if we ever fully eradicted a couple of the episodes that were 3 months apart.

Parents don't let the number 3 scare you, but i would do everything in my power not to let a second episode happen!!!

 

i also like the last statement

“You have a treatable and perhaps preventable form of mental illness,” she said. “While we’re debating, these kids could be being treated.”

[Tracie]

Ok the #3 just scared me... we were on #3 with IVIG #2

But she is doing good ..

So everyday her brain heals the better off we are.. I hope

 

Tracie

[nicklemama]

I can't worry about the 3 now. They all happened before he was diagnosed. I believe my DS is chronic. IVIG helped tremendously and I plan to keep him on prophy abx for years.

[T_Mom]

re: the reference to "3" episodes and it becomes chronic...

 

Most of our kids have had numerous blips, up-ticks in symptoms, do each of those qualify as an "episode" ?

 

The nature of the beast of PANS IS that it IS episodic, and kids can flare with simple exposure to illness in others--time and time again.

 

I would read that with a grain of salt -- just my advice.

 

I think the take away message is to promptly and effectively TREAT the symptoms with medically researched approaches to PANDAS/PANS -- as noted on the updated NIH webpage!!

____________________________________________________________________

 

We all know that left untreated, our kids lose years of their lives to this illness -- and the horrid behaviors/habits/compulsions can, of course, become "chronic"...thru habituation if nothing else.

-- don't take that as '3 strikes and you are out', however!

 

Rather, I think the message is to use effective, medical treatments for PANS/PANDAS and beyond that to use targeted therapies, and quickly, as needed, time and again.

Edited February 25, 2012 by T.Mom

[Joan Pandas Mom]

I noticed that too. Don't let the "3 times become chronic" scare you. My son's PANDAS did become chronic for many, many years. He suffered 7 years with it. After 8 IVIG's, 2 years now on abx., intensive CBT treatment, he is doing great! He was completely incapacitated with it last year.

[hawks]

Joan -

 

We have been working for a year now to get our DS15 out of the horrible 2nd exacerbation that started over a year ago. My son has made improvements from antibotics but still unable to attend school. The OCD rules. He wasn't able to finish the 3 week intensive program because the therpy was too much for him at the time - we are 10.5 weeks post #1 IVIG. Seeing ups and downs. Did insurance cover the ivig's and how far apart did you do them. I am glad you posted - I was wondering about your son. Thanks, Angie