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Scared to Death - Input PLEASE


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This could well be the case so you move on and get a pandas Dr! If you want to start AB immediately, Dr T in NJ will do phone consult, order the app. tests, order AB and talk to local Dr if he is willing to listen. It'll cost a few bucks but well worth it! As regards your other post and family not getting it - don't waste too much energy there either, it's common for those not around the child often or the dads (sorry guys) but not all, to minimize it all. Go with your mommy gut instinct. We are your family in the meantime, we get it!

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Hello and welcome to this amazing forum!

There is so much help for our children here!

My daughter had the same exact eye rolling. I watched your video of your daughter's concert & it brought such a wave of emotion back to me I just had to post. My 9 year old daughter has PANDAS. This last December she was in a little concert too and we videoed it as well and she had non-stop eye rolling.

You sound like you are an amazing mom so just remember that - you know your daughter!!! "Mommy instinct" is VERY REAL!! Keep researching & arm yourself with knowledge!

My daughter is considered severe, she has every symptom on the list of criteria and then some poor girl!!! Her fearful OCD thoughts are just awful :( I had to spend much of my time researching & presenting information to her doctor. He was supportive enough saying he couldn't "rule out PANDAS" but thought it was still a controversial diagnosis. ((Which I just can NOT understand this?!?!)

I found Dr K in Illinois - an amazing PANDAS specialist!!

I have to say it is such a great feeling when you can talk to a Dr who knows & accepts & understands what is happening to your child & has a WAY TO HELP THEM!!!

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Send me a message if you want a list of lab tests that many of us put together. It's a list that different doctors from different members of the forum ordered for their kids, and they all have different purposes in weeding out what is going on. You can then take it to your doctor who may only do some of them, but at least you then have an idea of what has helped us.

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